My husband recently diagnosed with PAH due to scleroderma. I was told 1 in 10 people with scleroderma has this. Any insight from anyone on this disease and treatment.
Posted 05 August 2014 - 06:36 AM
Welcome to these forums!
I'm sorry to hear that your husband has been diagnosed with Pulmonary Arterial Hypertension and I've included a link from our medical pages to give you more information about this disease and the treatments available.
We do recommend that our members, if possible, consult a Scleroderma expert, as sadly many rheumatologists do not have the knowledge and expertise to deal with this complex disease which does require specialised treatment.
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Posted 05 August 2014 - 07:49 AM
I never posted before, but have found this forum very helpful. As we found different symptoms here, we pretty much knew it was scleroderma. It was officially diagnosed in April. Pulmonary Hypertension in May and PAH confirmed in July. Rheumatologist claims to be knowledgeable about Scleroderma and Pulmonologist definitely has experience with Scleroderma and PAH; they are working together on the treatment.