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Biomarker for Diffuse Scleroderma skin has been discovered!


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#1 bharathi kannadasa

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Posted 06 August 2014 - 09:18 AM

Hi my friends,

 

I am Bharathi Kannadasan from India. My mom is suffering from Scleroderma; she was diagnosed 9 years back and was given Endoxon therapy four times as a pulse therapy; she was responding well. For a week she developed this Raynaud's phenomenon and was readmitted at Apollo hospitals Chennai (India). She was diagnosed to have lung infiltrates on both the lungs-basal lobes and was given Cyclophosphamide today, but her pain in the fingers is intolerable; it's actually killing her and she didn't sleep for the past four days.

 

This disease runs in our family; my moms mother & elder brother had the same disease. I could not see my mom like this & I need medical help.....are there any other hospitals in any country that are really showing some good outputs? Can I get some advice medically from abroad? Please do suggest some hospitals to me where the patients are of real concern.

 

Thank you, friends.



#2 Joelf

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Posted 07 August 2014 - 09:33 AM

Hi Bharathi,

 

Welcome to these forums!

 

I'm so sorry to hear that your mother has been suffering from Scleroderma and it's complications for the last 9 years.

 

I've included a link to our page on Scleroderma specialists which I hope you'll find helpful. We also have a news item My Consult: Second Opinion from Cleveland Clinic which includes a link about the Cleveland Clinic; perhaps you may consider this as you can access it from any part of the world.

 

I do hope that you will be able to obtain medical help and advice for your mother and that she will soon improve and feel much better.

 

Kind regards,


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#3 bharathi kannadasa

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Posted 11 August 2014 - 03:28 AM

Hi Joelf......thank you very much. I am going through the Cleveland consult; this is of great help to me.

 

Wishing very much for her improvement ....



#4 Joelf

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Posted 11 August 2014 - 10:28 AM

Hi Bharathi,

 

I do hope the Cleveland Clinic will be able to help your mother and that she will soon improve and be feeling better.

 

Kind regards,


Jo Frowde
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#5 Amanda Thorpe

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Posted 11 August 2014 - 02:23 PM

Hello Bharathi

 

Welcome to the forums, I hope you find all the help and support you and your mother need.

 

The Cleveland Clinic, My Consult, is a relatively new option and it's good to hear positive feedback. Many people live nowhere near a scleroderma expert so this option could be such a helpful resource for them. Amazing how technology and medicine move on, I mean could you imagine such a consult just 20-30 years ago? 

 

Take care and keep us posted.


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#6 Kathy D

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Posted 24 August 2014 - 07:31 PM

Please update, how is your mother?


Diffuse Scleroderma Diagnosed March 2009

#7 Joelf

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Posted 09 February 2015 - 12:20 PM

Please note MyConsult does not currently handle any autoimmune disease, including any form of scleroderma (localized or systemic).

 

Kind regards,


Jo Frowde
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