My beautiful wife has been newly diagnosed with Scleroderma, in process of additional testing - including pulmonary function - but Rheumatologist is quite confident of the diagnoses. We are in process of 'recovering' from this surreal experience and educating ourselves as much as possible. I'm hoping my wife (Jennifer) will join these forums for additional support, but I'm also careful not to push her and let her go at her own pace - she has always been very proud of her health and fitness, this is a substantive blow to her ego and self identity.
We have been wondering how to deal with this in regards to her employment and hoping for suggestions and shared experiences from you guys. Jennifer is a Pharmacy Manager and, here in Canada at least, the newest trend is the expectation that pharmacists will provide flu shots and travel vaccines regularly. Problem is, Jennifer no longer trusts her hand coordination for this and is at that point, with the new diagnoses, that she needs to disclose her current circumstances with her employer. Fortunately, it appears she has an excellent disability package - but not experienced with the process, and not even sure if she qualifies for being on 'disability' as of yet ... but her work environment is not particularly flexible in regards to accommodating her, not because the employer would be unwilling but because of the nature of her work - I.e. standing on concrete floor all day, hand manipulation of small items, repetitive hand movements (which is really starting to bother her), and the air conditioned environment which she finds it triggers the Raynaud's.
Any thoughts, suggestions and shared experience on this matter would be greatly appreciated.
CrankyGoat (aka Steve)