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Morphea, new sites forming after getting better 3 years ago...

morphea recurring

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#1 RebekahS



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Posted 07 September 2014 - 09:17 AM

Hello everyone. I am 27. I was diagnosed with localized scleroderma, or morphea, about 5 years ago.


I had a big spot on my anterior abdomen and a very large area encircling most of my right breast, and a couple of tiny ones. I was diagnosed via biopsy after 3 different fungus creams--that obviously didn't work--and all four doctors at the clinic scratching their heads. The spot on my breast actually dug into my skin so badly that it deformed my breast severely.


So, over the past couple of years, the spots got better. The one on my abdomen has gotten really thin (without using the steroid cream) and you can see my veins in the area. The one on my breast has gotten better too. There is still a lot of thick skin, but it has relaxed enough that the shape is closer to normal.  


Over the last couple of weeks, I have noticed one starting on my left breast. At first, I wasn't sure, but now the thickening has begun as well as the shine. On most of the websites that I have read, it mentions morphea kind of stopping after 3-5 years, sometimes getting a little better; however, I don't recall seeing any that talk about it coming back.


My question is, have those of you with morphea (or knowledge of it), heard of it coming back? Do you think if I go to the doctor and get the steroid cream (mine expired long ago and I always forgot to use it) that it will help prevent my left breast from becoming deformed too? Thank you for taking the time :)

#2 Joelf


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Posted 08 September 2014 - 03:22 AM

Hi Rebekah,


I'm sorry to hear that your Morphea appears to have flared up again.


I have no medical training, apart from a now out of date first aid certificate; however, I do understand that it's quite possible for new patches of Morphea to appear. Thankfully, I've not suffered with Morphea myself, but I know Amanda does have it and will probably be able to advise you further.


I would suggest that you do go back to your doctor; however, currently, UVA1 phototherapy is widely recommended as a first-line treatment and it is also used for treating well-established morphea. I've included a link to our medical page on Treatments for Morphea, to give you some more information.


Kind regards,

Jo Frowde
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#3 RebekahS



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Posted 08 September 2014 - 06:33 AM

Thanks so much! :)

#4 Amanda Thorpe

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Posted 08 September 2014 - 10:51 AM

Hello Rebekah

Welcome and sorry you have morphea in such a place. I have it all over my thighs, back, upper arms, oh, and butt. I also have systemic scleroderma.

Scleroderma can wax and wane and although it is supposed to follow some sort of pattern, doesn't necessarily. When I saw my scleroderma expert recently, he saw my disease hadn't read the book, neither has yours!

Reality is that scleroderma can do anything it likes and frequently does.

Jo has given you treatment details and I can't add more.

Take care and keep posting.

Amanda Thorpe
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#5 Shelley Ensz

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Posted 09 September 2014 - 03:49 PM

Hi Rebekah,


Jo and Amanda have given you great advice.  I am just swinging by to welcome you to Sclero Forums.  I hope you are able to begin a proper treatment program for Morphea soon!



Warm Hugs,

Shelley Ensz
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#6 RebekahS



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Posted 14 September 2014 - 04:12 PM

Thank you all for your feedback and greetings.


Hopefully I will be able to see a specialist soon.


 All the best!

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