Hello everyone. I am 27. I was diagnosed with localized scleroderma, or morphea, about 5 years ago.
I had a big spot on my anterior abdomen and a very large area encircling most of my right breast, and a couple of tiny ones. I was diagnosed via biopsy after 3 different fungus creams--that obviously didn't work--and all four doctors at the clinic scratching their heads. The spot on my breast actually dug into my skin so badly that it deformed my breast severely.
So, over the past couple of years, the spots got better. The one on my abdomen has gotten really thin (without using the steroid cream) and you can see my veins in the area. The one on my breast has gotten better too. There is still a lot of thick skin, but it has relaxed enough that the shape is closer to normal.
Over the last couple of weeks, I have noticed one starting on my left breast. At first, I wasn't sure, but now the thickening has begun as well as the shine. On most of the websites that I have read, it mentions morphea kind of stopping after 3-5 years, sometimes getting a little better; however, I don't recall seeing any that talk about it coming back.
My question is, have those of you with morphea (or knowledge of it), heard of it coming back? Do you think if I go to the doctor and get the steroid cream (mine expired long ago and I always forgot to use it) that it will help prevent my left breast from becoming deformed too? Thank you for taking the time :)