Hello everyone. My name is Brooke, and I wanted to give you a quick background on my story.
I was only 19 at the time, in school for cosmetology. I had been seeing a dermatologist about my acne, and she prescribed me minocycline. I had been on the minocycline for about a week, when all of a sudden in school, I passed out right in class. Upon awakening, I had a panic attack, and got sent to the ER. They assumed I was allergic to the medicine, so they sent me to my original dermatologist to run some bloodwork. I was also being tested for lupus, because apparently minocycline can cause lupus in some patients.
They ran the test called an ANACP (blood test) on me.
A little over a week later, I got my results yet and was absolutely horrified to find that my Scleroderma Antibodies was elevated. My level was 58, which I see here on other forums that you guys have numbers like 3.3 or decimals. Why is mine different?
Anyways, I went to see a rheumatologist followed by a pulmonologist and cardiologist. All came back normal, and my rheumatologist told me to keep a close watch, but that most likely I didn't have it. I was never diagnosed. She also told me to start taking vitamin D vitamins because I was deficient.
Two years later and I am 21, and just a week ago I had went to see the cardiologist for some heart palpitations ( Which turned out to be anxiety related) but he was asking what my rheumatologist had decided about my scleroderma. He offered to repeat the lab test for me, which I thought would be a good idea since I hadn't had it repeated yet. So I let him. Just today I got the lab result back and I haven't been able to stop crying. My scleroderma antibodies are 54, with the normal value being from 1-20. Going back to see the rheumatologist again. I'm so scared. Ive been so healthy all my life and now all of a sudden I have this lab result showing there is a possibility I have a disease. I guess I would just like some reassurance that I'm going to be okay and that there may be a possibility of some sort of fluke or that maybe my natural antibodies are just slightly elevated.
Any help would be appreciated, I'm just so terrified and I just need to speak to someone.
Thank you all so much.