Posted 30 March 2007 - 12:39 PM
My rheumatologist sent me to him because I was going on Plaquenil and also because of my dry eyes.
I had to laugh a bit because on the report he wrote that I had recently been diagnosed with Lupus.......what!!!!
It goes to show that they don't listen to you properly. I said to him that I was being investigated for connective tissue disease, and my rheumatologist thinks that it MAY be Lupus or something. But I don't know what my rheumatologist wrote on his referral though.
My report was pretty much good, the only abnormal thing he wrote was:
"In the right eye, there was some minor anomalous branching of the retinal vessels as they emerge from the disc substance, but this was not pathological."
So I am not sure what all that means, but he felt I was fine to continue on Plaquenil.
I am very annoyed though that he didn't test me for Sjogren's, since I thought that was why I was going there! But my rheumatologist never wrote that on the referral.
He just told me what drops to use for my eyes........and that was it.
Okay I have rambled enough, not very exciting I know, but I told you I would keep you updated.
Posted 30 March 2007 - 01:03 PM
I am glad that you don't have any contraindications for Plaquenil. I know what you mean about them not listening to you. My opthamologist always writes "Mixed Connective Tissue Disease" on my reports although I have told him repeatedly that it is Undifferentiated Connective Tissue Disease. Oh, well. My opthamalogist has also never tested me for sjorgrens, just keeps telling me to use the eye drops. I just figure if I do, I do and I wouldn't probably do anything differently even if I did.
Posted 31 March 2007 - 02:32 AM
I've been dealing with dry eyes (and other areas) for almost 10 years and only recently was tested for Sjogren's--and it came back negative. My ophthamologist (one of many I've seen) said that the majority of his Sjogren's patients never test positive--but he just knows they're Sjogren's so tests don't matter to him. It comes back to the antibody thing--obviously, the antibodies don't cause disease or everyone in here would either have Scl 70 or anti-centromere, or at least positive ANA. So even with the SSa and SSb, it's the same thing.
My chiropractor said something that I thought was sooo interesting. She said that years ago, doctors relied on their clinical knowledge and the patient's experience to diagnose. "If it walks like a duck, quacks like a duck, it's a duck." Today, for so many doctors if the blood tests don't show it, they won't diagnose it, or if the blood tests show it but the patient doesn't they WILL diagnose it. In other words, they've stopped relying on clinical knowledge and the patient's experience and have begun to rely too much on tests.
By the way, I think even if you were diagnosed with Sjogren's "officially" you'd still be told to just use drops. There doesn't seem to be much else that doctors can do right now for dry eye. I did have my tear ducts surgically closed, which has brought me amazing relief.
Posted 31 March 2007 - 05:09 PM
He did say that even if I was diagnosed it wouldn't change the treatment, and of course that is true, I would still have to used the drops.
He did mention getting the plugs or surgery, but he said that would be last resort, and I am glad you have found some relief from it Erin.
Posted 01 April 2007 - 11:49 AM
I know what you mean about doctors not listening... I have had doctors like that, but I am pretty pleased with mine now.
My rheumatologist asked me to get my eyes checked,but she's the sort who doesn't cross specialty lines... or she would have told me I have a cataract starting . However,
I can't be too difficult with her... I have only been seeing her once a year... my local rheumatologist is the one who diagnosed me with Sjogren's and got me started on Evoxac. I don't have drops that I use, but once we get moved, I'll get established with an opthamalogist too. You might ask if you could take something to help with your "overall dryness", too.
Posted 01 April 2007 - 12:12 PM
Visits like this doesn't inspired much confidence for competency. If you went in to be checked for Sjogren, and yet he didn't test for it, I would make another appt (free of charge to you of course) and make sure he tests for it