Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.


Hi, My Mother has been detected of scleroderma. Is the disease fatal?

  • Please log in to reply
3 replies to this topic

#1 Keerti Bhargava

Keerti Bhargava


  • Members
  • Pip
  • 1 posts

Posted 27 September 2014 - 08:21 AM

Hi, My Mother has been detected of scleroderma. Is the disease fatal?

#2 Joelf


    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,908 posts
  • Location:West Sussex

Posted 27 September 2014 - 11:56 AM

Hi Keerti,


Welcome to these forums!


I'm sorry to hear that your mother has been diagnosed with Scleroderma.


It's very difficult to answer to your question; the severity of the disease rather depends on which part(s) of the body are affected and the amount of organ involvement. I've included a link to our medical page on Types of Scleroderma which I hope will help to clarify the disease for you.


In order that we may be able to advise you further, perhaps you could let us have a little more information regarding your mother's diagnosis.


Kind regards,

Jo Frowde
ISN Assistant Webmaster
SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager
ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#3 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,925 posts
  • Location:U.K.

Posted 27 September 2014 - 11:57 PM

Hello Keerti

Welcome to the forums but I am sorry it's because your mother's ill.

As Jo has said everything depends upon the type and severity of the scleroderma. For example, if you have morphea, a localised type of the disease, internal organs are not affected and therefore life expectancy is not affected.

Although more information would be helpful we can't say whether your mother's scleroderma is fatal or not. Yes, people die from it, they also live very successfully with it as well.

Take care.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#4 miocean


    Senior Gold Member

  • Members
  • PipPipPipPipPipPipPipPip
  • 920 posts
  • Location:NJ

Posted 01 October 2014 - 03:47 AM

Hi Keerti,


There is no cure for scleroderma, you can only treat the symptoms. I know you must be scared about your mother's diagnosis but take heart in knowing that many people who have scleroderma live many years after diagnosis. Be careful of what you read on the internet because it will often be worse case scenarios. There are many more treatment options today than years ago. 


We are here for you to answer your questions and help you and your mother. 



ISN Artist