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Biomarker for Diffuse Scleroderma skin has been discovered!


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10 Years


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#1 miocean

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Posted 01 October 2014 - 03:42 AM

Ten years ago I was in a coma after coding blue twice. I had just been diagnosed with scleroderma and was in the hospital for a CT scan when I stopped breathing, my heart stopped and my kidneys failed.

 

What a long, strange trip it's been...

 

Thank you all for being here for me.

 

miocean


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#2 Sweet

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Posted 01 October 2014 - 06:53 AM

and thank you for being here for us!


Warm and gentle hugs,

Pamela
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#3 Joelf

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Posted 01 October 2014 - 08:57 AM

Hear Hear; I must agree with your sentiment, Sweet!

 

These forums have certainly been enriched by your input , Miocean!! :emoticons-thankyou:


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#4 judyt

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Posted 01 October 2014 - 04:24 PM

Hi mio,

 

Yes an interesting journey!! and maybe more interesting events to come who knows.  

 

Strange how this 'thing' affects us all so differently.   Here am I having sauntered through for something between 48 and 58 years, most of that time not knowing what on earth ails me.   And there you are all of of sudden wham! bam! in a crisis.

 

No wonder the medicos we come across are often baffled by our peculiar symptoms.

 

Wishing you a more even path along the rest of the way.

 

Best wishes

Judyt



#5 Shelley Ensz

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Posted 02 October 2014 - 08:14 AM

Hi Miocean,

 

Thank you for being here for all of us.  You are an intrepid survivor and an inspiration to us all!

 

:emoticons-group-hug:


Warm Hugs,

Shelley Ensz
Founder and President
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Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#6 Amanda Thorpe

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Posted 02 October 2014 - 02:04 PM

Miocean, it's our pleasure. You can do two things with scleroderma, complain about your lot in life, or get on and live! You got on and lived!

I am sure that you'll be here celebrating with all of us for years to come, at least I hope so.

Take care.
Amanda Thorpe
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#7 Kathy D

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Posted 02 October 2014 - 06:34 PM

:bravo:  :bravo:


Diffuse Scleroderma Diagnosed March 2009

#8 Margaret

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Posted 08 October 2014 - 02:53 PM

Hi Miocean.....so happy you have been here for 10 yrs.   :emoticons-yes:    Your life has been a positive inspiration for me, travelling this road with Gareth.

 

Take care, Everyone.

Margaret

Mom to Gareth,  26 years old, DS/ASD



#9 judyt

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Posted 08 October 2014 - 04:47 PM

Hi Margaret,

 

Haven't heard from you for a long time.   Is all going well enough with Gareth?

 

Judyt



#10 Lisa Vance

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Posted 12 October 2014 - 12:13 PM

Hi Miocean,

Thank you for being here for all of us. You are an intrepid survivor and an inspiration to us all!

:emoticons-group-hug:



#11 Lisa Vance

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Posted 12 October 2014 - 12:19 PM

Hi Shelley, you may not remember me! It's been years! My story was published in Voices of Scleroderma Volume 2. I just wanted you to know I'm still alive and doing well.

 

Everything has changed on here. I liked to have never found the site!

 

Hope all is well!

 

Lisa Vance from MS



#12 Shelley Ensz

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Posted 13 October 2014 - 08:00 AM

Hi Lisa,

 

Of course I remember you!  I am delighted that you have found us once again. Everybody with our Voices of Scleroderma book series, grab Volume 2 and Lisa's story is on page 94.

 

Is your mom still okay, and able to help you? How are things going for you? 

 

:emoticons-group-hug:


Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#13 Amanda Thorpe

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Posted 13 October 2014 - 09:36 AM

Hello Lisa

 

How lovely that you've come back! As I haven't actually met you yet "Hello and how are you?"

 

I was just saying the other day how the forums change, people come and people go, some return and some never leave :lol:  :lol: !

 

Take care.


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#14 Joelf

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Posted 14 October 2014 - 11:01 AM

Hi Lisa,

 

How super that you've come back to the forums and are posting again. :yes:

 

I'm so pleased to hear that you are doing well and hope you'll keep on posting, now that you've found  us again.

 

Kind regards,


Jo Frowde
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