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Linear Morphea/Coup de Sabre

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#1 jp3339



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Posted 11 October 2014 - 03:12 AM

Hello people of Sclero Forums,


I'd first like to start off by saying I am so grateful to have found this site and to hear there are others out there, it's always comforting to know you're not the only one out there.


I am currently a 21 year old female in my third year of university and was 'diagnosed' with morphea mid last year (2013). 


The symptoms first started in 2012 in my first year at university, I noticed a tiny bald spot in the front area of my scalp near my forehead. I thought nothing of it until couple of months later I was combing my hair back and I realised there was a large 2cm bald spot. This frightened me so I went to doctors who told me it looked like a fungal infection and gave me ointment to rub on it every night. 


Before I knew it it had grew a lot bigger and resulted in my scalp feeling like it was indented in. The skin colour in the affected area was brown and discoloured and there were occasional tingling sensations to it, the hair in the surrounding area  also came out very brittle and fell out very easily! :(  Luckily the area affected is able to be covered by my fringe however it affects my every day life, I can no longer tie my hair up with my fringe down, must always be pinned up or the end part of my bald spot sticks out and on windy days it's a nightmare trying to hold my hair down! 

I've also noticed the same indented discolouration around 1cm long  on my upper forehead and a similar patch just above my eyebrow.


In 2013 I was able to see a dermatologist who said it looked like morphea and there was nothing there was worth doing because it looked like it had fizzled out. I'm just terrified that it will get any bigger or what if it affects my face? 


Is anybody out there who went through a similar situation to myself where it just stopped? 


The dermatologist also said I would be able to in the future, get it surgically removed and have my surrounding skin tissue stitched together.. ? 


I want to upload a photo to show you what it's like but I don't know how... 


When I google what I have it seems to show the worst case scenario and it is getting me very paranoid.


It hasn't seem to grown since last year...  


I live in New Zealand and the dermatologist I saw wasn't very reassuring, does anybody have any advice or possible treatments I could look in to??


Thank you!

#2 judyt


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Posted 11 October 2014 - 11:35 AM

Hi JP,


Welcome to the Forums, sorry it is because you have Morphea but you have come to a good place for help.


I too live in NZ and am well aware of the dearth of Specialists in this field, however, depending on where you live it should be possible to find somebody to give you proper advice.


If you would like to send me a private message I can try to give you some leads which will help.


To send a Private Message just double click on my name at the top of this post and you will find a page which gives you the option to 'send me a message'.


I will look forward to hearing from you.



#3 Joelf


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Posted 11 October 2014 - 11:55 AM

Hi JP,


Welcome to these forums!


I'm sorry to hear that you've been diagnosed with Localised Scleroderma and I've included a link to our medical page to give you some more information. It's fortunate that Judy is also resident in New Zealand and able to give you some advice.


I can understand how worried and upset you're feeling and also the irresistible desire you feel to look up your symptoms on Google and then frighten yourself witless (been there - done that!! ;) :o ) Unfortunately, there are lots of sites on the internet that are plain alarmist and will give you the worst scenario; please do peruse our medical pages for accurate and up to date information.


I've included details of Posting photos in our Photo Gallery, which I hope you'll find helpful.


Kind regards,

Jo Frowde
ISN Assistant Webmaster
ISN Sclero Forums Manager
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