Hi....My mom was recently diagnosed with scleroderma. We do not yet know how serious, which type, and are awaiting appointments. I have been researching online and have managed to scare myself and am looking for advice, information, and anything that you can suggest we do to help my mom.
She has Raynaud's...I would say 10-20 times a day.
She has tightenting of the skin, arms and hands.
She has severe swelling of her joints and as well a lot of swelling (particularly ankles).
She has interstitial cystitis which is basically chronic severe bladder infections... I am unsure if those are related??
She is having severe allergy like symptoms which are affecting her ability to breathe on a regular/daily basis.
Can anyone suggest what we should do first? Is there somewhere we should go where they would be best able to help her?
Her appointment for details and to see a rheumatologist is December 9th....another month away and I am just very worried....
Any advice or info you could provide would be MOST appreciated.
Big Thanks from Canada :)