I have read many great things about Cellcept. Is anyone on it, or has anyone been on it?
Was it effective?
Were there serious side effects?
How long did you try it?
I am currently on Methotrexate but am worried about my kidneys, MTX can make lungs worse, AND the fact that it makes me feel awful.
This is what I have read from Johns Hopkins site:
A recent study suggested that methotrexate did not significantly alter the skin score (a measure of skin thickening) compared with placebo (no treatment). Cyclosporine is not completely studied due to reports of renal toxicity. The most promising drugs are mycophenolate mofetil or cyclophosphamide with or without antithymocyte globulin. Unfortunately, there is no placebo-controlled study (i.e., half the patients get the medication and half get a sugar pill) to define their exact role in treating scleroderma, but if used during the active inflammatory phase of the disease, they appear to work.
I have also read studies of Cellcept reducing skin scores and keeping or IMPROVING lung function.