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Biomarker for Diffuse Scleroderma skin has been discovered!


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Saw my Sclero doctor yesterday


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#1 quiltfairy

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Posted 04 December 2014 - 01:05 PM

I saw my scleroderma  doctor yesterday, it was a good appointment, things are much better than he thought.    After all the tests he prescribed amitriptyline to help with muscle pain  at night that was waking me from my sleep.

 

 He did say my lungs are involved but were doing ok.  He did measurements of my heart through sonogram and said everything measures good and my heart was doing ok.

 

He is going to do another pulmonary function test in a year but that my scleroderma was progressing slowly and he did not want to do any harsh treatments at this time like chemo or a stem cell transplant as that can be harder on the body than scleroderma can.

 

He did not get to see the MRI but said that could change things real fast.   I had that after my appointment so he said he would call me in about 5 days to let me know about that.

 

So I am pleased with my appointment.



#2 miocean

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Posted 05 December 2014 - 05:48 AM

Dear quiltfairy,

 

It is always good to be pleased with an appointment. I am glad your doctor is scheduling the right tests for you. I hope you are keeping copies of all of them. Keep us posted on your progress with the muscle pain and the results of the MRI.

 

miocean


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#3 Joelf

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Posted 05 December 2014 - 06:50 AM

Hi Quiltfairy,

 

I'm so pleased to hear that your appointment with your Sclero doctor went well. You must be feeling much more encouraged by this and I hope that the results of your MRI are equally good.

 

Here's hoping that everything continues to do well. :emoticons-yes:


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#4 Shelley Ensz

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Posted 05 December 2014 - 06:37 PM

Hi QuiltFairy,

 

I'm glad your appointment with your scleroderma expert went well.  So far, at least.  It is reassuring to pass tests and be able to avoid harsh treatments, isn't it? 

 

I hope you pass your MRI with flying colors.

 

:emoticons-group-hug:


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Shelley Ensz
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#5 quiltfairy

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Posted 06 December 2014 - 04:50 PM

Yes, it has put me much more at ease than I was. The new pill is kinda working although I am still waking up in the night; it seems my bladder is not as strong as it used to be.

 

I should have some answers to my MRI on Monday or Tuesday; my sclero doctor said he would call me in 5-6 days.

 

Thank you all for your replies.