Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.


Saw my Sclero doctor yesterday

  • Please log in to reply
4 replies to this topic

#1 quiltfairy


    Silver Member

  • Members
  • PipPipPipPip
  • 165 posts
  • Location:mapleton , Iowa

Posted 04 December 2014 - 01:05 PM

I saw my scleroderma  doctor yesterday, it was a good appointment, things are much better than he thought.    After all the tests he prescribed amitriptyline to help with muscle pain  at night that was waking me from my sleep.


 He did say my lungs are involved but were doing ok.  He did measurements of my heart through sonogram and said everything measures good and my heart was doing ok.


He is going to do another pulmonary function test in a year but that my scleroderma was progressing slowly and he did not want to do any harsh treatments at this time like chemo or a stem cell transplant as that can be harder on the body than scleroderma can.


He did not get to see the MRI but said that could change things real fast.   I had that after my appointment so he said he would call me in about 5 days to let me know about that.


So I am pleased with my appointment.

#2 miocean


    Senior Gold Member

  • Members
  • PipPipPipPipPipPipPipPip
  • 920 posts
  • Location:NJ

Posted 05 December 2014 - 05:48 AM

Dear quiltfairy,


It is always good to be pleased with an appointment. I am glad your doctor is scheduling the right tests for you. I hope you are keeping copies of all of them. Keep us posted on your progress with the muscle pain and the results of the MRI.



ISN Artist

#3 Joelf


    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,896 posts
  • Location:West Sussex

Posted 05 December 2014 - 06:50 AM

Hi Quiltfairy,


I'm so pleased to hear that your appointment with your Sclero doctor went well. You must be feeling much more encouraged by this and I hope that the results of your MRI are equally good.


Here's hoping that everything continues to do well. :emoticons-yes:

Jo Frowde
ISN Assistant Webmaster
SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager
ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#4 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,280 posts
  • Location:Minnesota

Posted 05 December 2014 - 06:37 PM

Hi QuiltFairy,


I'm glad your appointment with your scleroderma expert went well.  So far, at least.  It is reassuring to pass tests and be able to avoid harsh treatments, isn't it? 


I hope you pass your MRI with flying colors.



Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#5 quiltfairy


    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 165 posts
  • Location:mapleton , Iowa

Posted 06 December 2014 - 04:50 PM

Yes, it has put me much more at ease than I was. The new pill is kinda working although I am still waking up in the night; it seems my bladder is not as strong as it used to be.


I should have some answers to my MRI on Monday or Tuesday; my sclero doctor said he would call me in 5-6 days.


Thank you all for your replies.