My name is Myriam and I was wondering if anyone out there has tried the Scleroderma Stem Cell transplant treatment? I've been researching it now for about 9 months. I understand it's available in Northwestern Memorial Hospital in Chicago, Illinois, under a Dr. Richard Burt but they can't confirm their 80% success rate. I understand they take out your stem cells, store them, wipe out your old immune system with intense chemotherapy, then place your stem cells back. I understand there's a time period between when they wipe out your old immune system and when your new one comes in that you've got no immune system. I was told that during this time, if one little bacteria hits you, you die. They try to be as careful as possible, but still one in ten die. Even after your new immune system comes in, you're still immunocompromised for a while, so you still have to virtually remain sterile.
Another brand new treatment is called Riociguat. Is anyone trying it? How's it going?