I'll try to summarize my situation briefly. I went to a dermatologist because hard patches of skin had appeared on my forehead. I had a blood test and received a positive result for ANA. I took this as basically a death sentence. However, another doctor recommended another blood test, saying the earlier results showed only slightly elevated levels and could be a false positive. I also had an x-ray of my chest for lesions. Both the blood and the x-ray showed nothing to worry about.
But at the same time the doctor said the skin issue almost certainly was scleroderma. That was a few months ago and the hard skin on my forehead has definitely gotten worse. not drastically worse, but worse. And despite following a very healthy diet, where I've cut everything other simple meat and vegetables, and a little fruit, I'm having gastrointestinal and bowel issues. Nothing really terrible, but the feeling of my stomach being not quite up to the task is fairly persistent.
On the other hand, I feel quite strong and healthy most of time, as far as physical exercise is concerned.
What I can't get my head around is the disparity between the seriousness of scleroderma as I read about it online, and the total absence of any treatment or advice from my doctors. They've basically said just wait and see if it gets worse.
Can anyone recommend anything, anything at all, that I should be doing? And how worried should I be?
Any help or advice will be appreciated.