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Are You Eligible for Clinical Trials for Scleroderma or Pulmonary Hypertension?

clinical trials

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#1 Joelf

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Posted 11 September 2014 - 10:00 PM

Would you like to help scientists find a cure for scleroderma? Dozens of clinical trials for scleroderma and pulmonary hypertension are actively recruiting now. Review them and be sure to ask your scleroderma expert about the ones you are interested in. Posted 12/09/2014. (Also see: Current Clinical Trials and Scleroderma Experts)

 

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#2 miocean

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Posted 10 December 2014 - 04:08 AM

I never qualified for any trials due to the renal failure. However, I am participating in two studies, one on pulmonary hypertension in scleroderma (PHAROS) and the other on calcinosis in scleroderma.

 

I am hoping it will help someone somewhere sometime.

 

 

I had a follow up with the PHAROS Study this week. It involved filling out a questionnaire again. This is done approximately every 6 months. I found out I am one of 37 patients in the study under my doctor. It is a national study and there are many other doctors participating. I was told there are two more years for it.

 

I hope this study helps find answers to pulmonary hypertension in scleroderma patients.

 

miocean

 


 


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#3 Joelf

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Posted 10 February 2017 - 10:00 AM

Would you like to help scientists find a cure for scleroderma? Dozens of clinical trials for scleroderma and pulmonary hypertension are actively recruiting now. Review them and be sure to ask your scleroderma expert about the ones you are interested in. Posted 02/09/2017. (Also see: Current Clinical Trials and Scleroderma Experts)


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#4 Jeannie McClelland

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Posted 17 June 2015 - 09:32 AM

I am at 6.5 years of participation in the PHAROS study and have donated blood to several genetic studies - any participation in any way is so valuable. As Miocean pointed out, even if one doesn't qualify for a clinical trial, there is still a way to give researchers data that might someday lead to a cure.


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