I was scheduled for a secretion selection test yesterday by my GI doctor due to high gastric serum levels and an elevated CEA. I have never had colon cancer and my nephrologist has questioned why she is using a CEA test as it is not a diagnostic tool. My GI doctor said the test is for benign tumors than can turn malignant and since it is just an injection of the hormone into you and subsequent blood draws I agreed to the test.
To make a long story short, I spoke with the both scheduling department and the doctor the day before the procedure. I showed up at the hospital in the morning. It took two tries to get the IV in. Two and a half hours later I was told the drug for the test was coming from the pharmacy, then doctor came and questioned why the test hadn't been started, returned to say the pharmacy was mixing the medicine, and then showed up and said, "You won''t believe it." I looked at her and said, "They don't have the medicine." Bingo. She was very frustrated but had to go on to her other patients who were there for tests and told them to bring me a breakfast tray.
I am amazed at how calm I stayed. I am so used to things going wrong and therapy really does help! I asked to see the manager as I did not want to get billed for anything and was told she was going down to billing to make sure. They brought me a breakfast tray with a bagel, banana and coffee and I asked if I ate it would I be charged $5,000. :D I then requested to see the manger herself, got her card so I have her name and went home.
In the meanwhile, I had my pulmonary tests at my scleroderma hospital 10 days ago and still haven't heard from my doctor even though they told me she would have the results in a few days. I am concerned because I desaturated on the 6 minute walk test very quickly, where usually it is in the 3-4 minute mark and I have been shorter of breath. I have an email in to the doctor.
Keep in mind I live in a part of the U.S. where there are good medical centers. I can't imagine living where you don't have access to them if this is what I encounter here.
Another chapter in 'How I Fell Prey To The Medical Machine And How It Killed Me."