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Biomarker for Diffuse Scleroderma skin has been discovered!


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Celebrating SCLERO.ORG's 17th Anniversary!


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#1 Joelf

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Posted 11 January 2015 - 10:35 AM

Let's Celebrate! January 2015 marks the 17th anniversary of the SCLERO.ORG website, and the 13th anniversary of the nonprofit International Scleroderma Network, which developed out of the website. Posted 01/08/2015.

 

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


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#2 Joelf

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Posted 11 January 2015 - 10:45 AM

A Very Happy Anniversary to SCLERO.ORG and the nonprofit International Scleroderma Network!!    :woohoo:   

I'm so thrilled and pleased to be part of such a great organisation and getting to know all our fantastic members has certainly enriched my life!!

 

Long may it continue!!

 

:emoticons-line-dance:  :balloons: :emoticons-clap: :balloons: :emoticons-line-dance:


Jo Frowde
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#3 Margaret

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Posted 11 January 2015 - 12:23 PM

I will gladly toast a glass of fine wine tonight !! :emoticons-clap:   To think it's been 8 years since I joined.....so scared of the future, for Gareth, from all the misinformation that was out there.  I read your updated medical information all the time. 

 

:emoticon-congratulations:   and a HUGE  :thank-you:

 

Margaret



#4 quiltfairy

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Posted 11 January 2015 - 05:22 PM

That is so cool to have been around for 17 years.

 

I hope this site is around for another 17 years.   It is nice to get good information instead of all the junk.  When I found this site I thought I may only have a few months to a year to live.   This site has helped to relieve my mind and to know I am going to be around for a long while.

Thank you sclero.org  :woohoo:  :woohoo:  :terrific:  :thank-you:  :emoticons-thankyou:  :yes:  :woohoo:



#5 Buttons

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Posted 12 January 2015 - 09:51 AM

Happy anniversary to Sclero.Org!! :thank-you:   :emoticons-clap:

 

I would also like to thank all present & past  members who have helped to run & maintain this valuable site and contribute some very informative information for all to access.

 

Buttons



#6 miocean

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Posted 12 January 2015 - 05:47 PM

:balloons:  :balloons:  :balloons: Happy Birthday ISN!! :balloons:  :balloons:  :balloons: 

 

Party Time!

 

:emoticons-line-dance: 

 

I'll bring the cake and the spoons.

 

:spoon:  :spoon:  :spoon: 

 

miocean


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#7 Amanda Thorpe

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Posted 14 January 2015 - 02:21 AM

:woohoo: HAPPY BIRTHDAY to the ISN :thank-you-2: 

 

 

 

What a privilege to be part of this amazing organisation that changes the lives of people with scleroderma and related illnesses and their family and friends. For 17 years, Shelley Ensz, with the same certainty of night following day, has kept the ISN online for the benefit of us all.  Thank you to both! :balloons:  :balloons: 


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#8 Sweet

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Posted 16 January 2015 - 07:18 AM

Yay!!  :emoticons-line-dance:  Thank you Shelley!!


Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#9 Shelley Ensz

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Posted 27 January 2015 - 07:53 PM

Thank you all for celebrating the 17th Anniversary of Sclero.org!  Without all our tremendous worldwide volunteers and loyal followers, we would still be just that one first humble page of links that was very ambitiously named, "Scleroderma from A to Z".

 

We have all been blessed with finding each other, and creating a world class community for ourselves, with the most stellar information and support to help us all deal best with scleroderma and related illnesses.

 

My love and thanks to each and every one of you, for helping to make the sclero world a better place! :emoticons-yes: :terrific: :balloons:
:emoticons-clap:

:emoticon-hug:


Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.