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Repeat Colonoscopy

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#1 Buttons


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Posted 12 January 2015 - 10:14 AM

Some of you may remember that 12 months ago I had to have a Right hemicolectomy following a routine  colonoscopy where they found I had a very large growth in the hepatic flexure which had to be removed.

Well at the end of last week I had a follow up colonoscopy to check everything was ok & that I had no more growths. I am pleased to say that it was clear except he thought I had adhesions formed after the surgery last year because it was extremely painful!

I have found the test to be ok in the past but this one was awful!! I followed instructions for the prep to the letter but he said it was a poor prep! What was I supposed to do! But I did wonder if the fact that since my op my bowels do not act in the same way may have not helped and even with sedation it was extremely painful. 

Thankfully I do not need to have another one for 3 years.

Have any of you found it to be so painful a procedure?



#2 judyt


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Posted 12 January 2015 - 11:52 AM

Hi Buttons,


I hate Colonoscopies :nervous: I have had sooooo many in my day and often I get the complaint that the prep is not good enough.   Once again I think people just don't understand what goes on inside of us.  


The latest one I had was last week.   I have been experiencing internal bleeding on and off for the past 2 years or more and the culmination has been two 3 day stays in hospital.   The first was 21 to 23 December and the second one last week.   During last week's stay the Gastro decided she wanted another Gastroscopy (previous one was 22 Dec.) and a Colonoscopy and that they would do them both together.   I spent 24 hours on prep and in the end they decided to go ahead anyway.  You see, it is NOT our fault.   In hospital they can control what goes in and see what comes out so there is no way I could cheat.


I had the usual sedation and I am sort of puzzled about that too.   Sometimes, or rather usually, I go out like a light and know nothing until I am in recovery.   Sometimes I don't and I am aware of everything that is going on.   This time the Colonoscopy was painful, not excruciating but enough to make me groan and whimper in spite of myself.   I remember the nurse talking to me and comforting me.   Why this happens sometimes I can't figure out.


The outcome of all this was the next day when "the Team" arrived to tell me what would happen next, and it was prefaced by the fact that things inside me move so slowly that they will have to take that into account :emoticons-clap: :emoticons-clap: .   This time they found some bleeding spots in my duodenum and cauterised them which seems to have done the trick so far but the future plan is to do a Balloon Enteroscopy which is an examination of the small intestine, once a no go area, but now it seems there is a procedure to get down there.   Just hope like **** that they put me out good and proper for that one.


I have been having Colonoscopies since the mid 1980's and this one was the most painful that I can remember.


So all in all this past month I have had a blood transfusion, a Ferritin infusion, two Gastroscopies and one Colonoscopy and I am booked for a special CT next week.   About time I had a break, don't you think.



#3 miocean


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Posted 12 January 2015 - 05:40 PM

Judy and Buttons,
I think the way our GI systems don't work with scleroderma has a lot to do with poor preps for colonoscopies. Last year I had one and for the first time I wasn't cleaned out all the way. I couldn't understand it because I was eliminating clear fluids most of the night but then the next morning had some yellow. Because of this I had a repeat one about 6 months later but my doctor started the prep with dietary changes and laxatives several days before. I was cleaned out that time. Due to my pulmonary hypertension I was under light sedation for the last colonoscopy and there were times I could feel it and told them.

I was totally aware of my first colonoscopy and watched it on the monitor but didn't feel a thing. I had another colonoscopy when I was on dialysis and I threw up a lot of the prep. I was really concerned that I wouldn't be clean out but I was. I have a friend with none of our health issues who recently had one and she said she was sore for a couple of days when she got home.

It might be a good idea for us sclerodermians to mention motility issues to GI doctors if they prescribe colonoscopies to insure we are cleaned out, the test is a good test, and doesn't have to be repeated.

I'm sorry you both had to go through this

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#4 Joelf


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Posted 12 January 2015 - 10:42 PM

Hi Buttons,

I'm so sorry to hear that you had such a painful procedure,but on the positive side at least everything was okay, which must be a great relief for you.

Thankfully, I've never had to have a colonoscopy.....and I hope that pleasure will be indefinitely postponed!! ;)

Best wishes to you.
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#5 Buttons


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Posted 13 January 2015 - 02:09 AM

Hi Judy,

I understand fully what you say and just hope that they have manage to sort out some of your issues. You certainly deserve a rest from all those medical procedures!

Miocean, I never thought that it could be motility issues that could cause the poor prep. I do have some motility problems albeit mildly.

Jo, I'm just looking forward to our coming holiday which we'd had to postpone due to the op last year!


#6 Amanda Thorpe

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Posted 13 January 2015 - 03:11 PM

Hello Buttons

Yep, poor prep! That's what I was told when I had the procedure but no pain. However, when I had one pre Scleroderma diagnosis (IBS diagnosis but I wonder if actually Scleroderma) and I apparently started swearing at the doctor insisting he stop! Now that one was painful hence shouting STOP.

Good news about the results!!

Take care.
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