Update on how I am doing.
I keep getting large red areas on my left hand; they swell, are hot to the touch, but there is no pain associated with it. I took pictures of it for my doctor since it happened on a Friday and the clinic was closed until Monday. The strange thing is the spots that look painful are gone the next day. I had a flare up that she saw the other day when I went in to get a script from her; she saw my face, I have the same thing in my cheeks. She says that it looks like lupus; she is going to send a note to my sclero doctor and let him know because he thinks I have something going on besides scleroderma that is involving my muscles more than just scleroderma should be.
This disease is so funny with all its waxes and wanes; a person never knows what is around the corner it seems everyone's symptoms are different.
I also have fluid in my ears; it just seems to happen since my head injury in 2008 but the doctor is not sure if it is the sclero or not. Just a frustrating thing as when it happens I can not do much of anything because I get dizzy and could fall. My doctor says I am a real challenge for her and a good learning experience. Oh, with the ear thing there is no swelling or infection, my body just has a mind of its own.
Other than all this strange stuff I am working on a quilt trying to get it done; it is slow work as I tire easily but I am persistent.
I hope everyone is doing good; my blessings to each of you.