For the last few years, I've experienced periods where I just don't feel well and have a low-grade fever, and experience extreme exhaustion. These usually last 2-4 weeks at a time. I never paid much attention to them. This past August, my TMJ flared up badly resulting in my jaw moving out of place. My dentist prescribed a max dosage of ibuprofen for as long as necessary, and even though I disagreed, I didn't know what else to do. Fast forward a few weeks to ankles swelling, canker sores, and another episode of feeling off with a fever. The ibuprofen never touched the fever, either. When I developed petechia on my legs and feet, I was sent to the ER. They couldn't find anything, but told me to stop taking the ibuprofen and sent me to an internist for possible autoimmune issues.
After extensive blood tests, I was immediately taken off Simvastatin for my high cholesterol as there were problems with my liver. After an ultrasound and further blood work, all returned to normal. But the tests results also came back positive for Limited Scleroderma. The Scl-70 was negative, but everything else was positive. I was referred to a rheumatologist but the wait was 4 months to get in. I called one afternoon in October to see how long it might really be, and they had just had a cancellation and took me in.
She said I don't have Scleroderma at this point, even though I tested positive. I was put on Plaquenil to stop whatever was happening from developing further. I have another appointment in 3 months. Since then, I've noticed changes but I don't know if they're related. I itch everywhere most of the time. I started taking Allegra D daily which seems to help a lot. I still itch but not nearly as bad.
My fingers have started swelling in the morning, but it goes away as the day goes on.
If I sit for more than 30 minutes, I am incredibly stiff when I get up. It takes a few minutes for it to go away and I have to walk stooped over in the meantime while it works its way out.
My right heel has become extremely tender and painful. According to Google, it could be Achilles tendonitis but I don't exercise, "pump bump" but I only wear flats, or possibly a result of scleroderma.
My skin is fine, although I do have a few very small spots that have no pigment.
I guess my question is, are any of these things symptoms of early-stage Scleroderma? If I don't have Scleroderma, what do I have? What is the diagnosis for the exhaustion and low-grade fever? Is there such a thing as autoimmune disease without a specific diagnosis? I'm just pretty confused.
Thanks for any thoughts or advice.