I am new here. Have been diagnosed with scleroderma for six years and lately my rheumatologist said there is a lupus overlap. I have fairly severe Raynaud's in my hands and feet, and sometimes even in my tongue! About two months ago my right index finger turned blue and failed to get back to normal. After a week or ten days of this I went to my general practitioner who said it was normal in my condition and as there was no infection he could not do anything about it. A few days later a black dot appeared in the tip of my finger and it became increasingly painful. The skin then broke and I ended up with a couple of dark spots plus a couple of pus filled pockets. Went back to GP and he gave me antibiotics and nifedipine. No good. The finger got progressively more sore until the pain was unbearable. Back to GP, and I got sent to the emergency department where they sliced my fingertip open and cleaned the pus. The pain got worse and worse, I was sent to plastics and back to the emergency department, and my finger all the time got harder and blacker. Finally, a plastics surgeon saw me and said the fingertip was necrotic for lack of blood supply and it needed removing. I spent last week having an Ilosprost infusion as a day case at hospital and this Thursday the surgeon is operating to remove all the necrotic tissue in my finger ( the whole of my fingertip, going up about half way under the nail).
Sorry for the long post, I just wanted to know if anyone here has had a similar experience as I am petrified about the upcoming surgery and the possible pain of convalescence.
Thanks in advance!