Jump to content


Did you know that exercise increases inflammation in systemic sclerosis?


Photo

Fingertip amputation


  • Please log in to reply
22 replies to this topic

#21 Pinetree

Pinetree

    Newbie

  • Topic Starter
  • Members
  • Pip
  • 6 posts

Posted 19 February 2015 - 11:44 AM

Hi,

Things seem to be progressing smoothly this time round, although I keep obsessing about every little twinge and sensation and sort of dreading what I will see every time the dressing comes off for a change. But so far so good! I am now off painkillers for the first time in three months :) Coming off some of the stronger ones was quite an experience, I spent a full day in tears and another couple cranky as anything. I go back to work on Monday, after working from home today and tomorrow, my boss has been a real star in all this. Really looking forward to re engaging with life as I have been feeling as if I had dropped out of it. I went out today on a non-hospital related trip for the first time in three weeks, it was only to the shops but felt great.
I agree that stress makes everything worse, and I am a born worrier, but my husband has been really supportive and a real rock, making sure I did not get carried away with stress and negativity.
So, hopefully out of the woods, but not shouting it from the roof tops just yet.

PS. I did have a try at posting some photos but did not manage to create a member album. Will try again soon.

Cheers,
Pinetree



#22 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,275 posts
  • Location:Minnesota

Posted 02 March 2015 - 11:45 AM

Hi Pinetree,

 

I'm really glad things are going better for you. How have things been going back at work? 

 

:emoticons-group-hug:


Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#23 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 08 March 2015 - 02:13 PM

Hello Pinetree

 

Good, good and even better!

 

Remember to be kind to yourself, for instance, if you were on prescription painkillers for 3 months you should have titrated down and then off of them rather than go cold turkey. Doing so not only causes us emotional stress but can also stress the body and be dangerous because we become physically dependent on any chemical we take for an extended period of time. I say dependent not addicted, that's another matter.

 

I have titrated down and off sleeping tablets, steroids and decided to abruptly stop amitriptyline after being on it for a number of years and then wondered why I was a wreck for weeks. Duh! We've all done it but no way am I doing it again!

 

Also be kind to yourself returning to work, I don't know how long you were off for but when I was off for 3 months I had to do rehab hours on my return and it took a month to build back up to full time! I was amazed at how hard I found it and really did need to start slowly.

 

I understand dropping off the edge of the world, I did 7 years ago and am still waiting to come back! :lol:  :lol:  :lol: 

 

Take care.


Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)