Just got back from the hospital. Gareth had his esophagus stretched --again -- second time now. The doctor said he would need it done every 12-14 months now. She said that most people have a straight esophagus, but Gareth's looks like one of the silly curly, swirly straws!! It would explain why his food has problems going down.
The curving is coming from the connective tissue disease, which is tightening some areas of the esophagus and not others, thus the twisting. He has gastritis, which is nothing new. She is upping his Prilosec to twice a day, for 6 weeks, then back to once a day. She said when he complains about his food being stuck high in his neck area, it is really stuck in the lower 1/2 - 1/3. It's the way the nerves/body/brain reads it.
He wanted to eat as soon as he walked in the door, so he's not hurting too bad now.
Take care, Everyone,
Mom to Gareth, DS/ASD