Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.



  • Please log in to reply
3 replies to this topic

#1 quiltfairy


    Silver Member

  • Members
  • PipPipPipPip
  • 165 posts
  • Location:mapleton , Iowa

Posted 13 February 2015 - 06:41 PM

I saw my sclero doctor Wednesday; it was again a good appointment. He is doing more tests for stuff that can cross over and for other stuff, but the one that confused me was when he first said it was for Hepatitis B and C. I asked him why and he said it was because I was from an area that had had a tornado in the last 5 years (well four years to be exact) and he had discovered that the tornado had gone through our sewer system, so to be on the safe side it would be a good idea.

I did not have much damage; all I had to do was replace my roof and air conditioner and I had to wash my house. I did get a lung infection that seemed to go through the whole town; my doc thought it was because of the sewer stuff all over all the houses.Anyway back to my appointment; he also checked for Lupus as I have a few signs of that. Then I did another CAT scan for my lungs; he is a little worried about them as my breathing is on the lowest part of normal and that is one thing that seems to change rather quickly with scleroderma.

My sclero doctor thinks the thing with my hand getting red, swollen and hot to the touch is an allergy to something so he put me on a strong antihistamine to make sure that it does not affect my breathing.

The trip to Omaha was quite nice this time as I drove myself and had lunch with a long time friend I had not seen for a couple of years. Coming home I was able to drop off my sewing machine at the shop to get it fixed and I also took time to have coffee with my aunt and uncle, so all in all it was a great trip.

#2 Joelf


    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,901 posts
  • Location:West Sussex

Posted 14 February 2015 - 06:05 AM

Hi Quiltfairy,


Glad to hear you had a good appointment with your Sclero doctor; he does sound as if he's on the ball and does give you a thorough check over.


Thank goodness we're spared tornadoes in the UK; the transport system can't cope with the merest flutter of snow, so I can't imagine how we'd get on with a tornado! Strong winds on the weather forecast sends everyone running to batten down the hatches in a total panic!! :rolleyes: ;)


Kind regards,

Jo Frowde
ISN Assistant Webmaster
SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager
ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#3 quiltfairy


    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 165 posts
  • Location:mapleton , Iowa

Posted 15 February 2015 - 08:37 AM

I never used to be scared when a storm brewed itself up, but that has changed now. When a spring storm brews I make sure I have all my safety supplies in the basement, but the thing that scares me the most now is when the town blares the tornado sirens. Every first Monday of the month they go off for seven minutes.


The one great thing about our town is we had no fatalities or major injuries; just one broken leg and a premature baby by four weeks. We are the only town that can brag that for a EF-3 tornado, even that it took one third of our town.

#4 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,280 posts
  • Location:Minnesota

Posted 18 February 2015 - 10:09 AM

Hi Quiltfairy,


It sure sounds like your scleroderma doctor is on the ball and watching out for you very well.  Right off hand, I'm sure few people would associate tornadoes with an increased risk of hepatitis, but now that you mention it, I can see how anything that disrupts the sewer system could create a lot of risk to public health.


I especially love the way you planned your medical trip to include time out for meeting with a friend and getting your sewing machine repaired. Those sort of things are vital to our well-being, often even more so than medical care. Friendship and hobbies provide an uplift that is great for our immune system and they provide a much-needed buffer to build our resilience. Two thumbs up for that! :emoticons-clap:


Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.