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Biomarker for Diffuse Scleroderma skin has been discovered!


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Mostly good news from my sclero doctor today.


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#1 quiltfairy

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Posted 26 February 2015 - 01:59 PM

I got a call from my sclero doc today, all my blood tests were negative. No Hepatitis B or C.

Lupus test was also negative, although my CT scan of my lungs was not so good. I have nodes in my lungs an they are not certain what they are but I do not seem to have any bad lung disease. The nodes are common in scleroderma.

I also do not have the emphysema that the doctor in another town told me I have. He misread the CT but of course that happens in small towns and that is why I go to the city to see the specialist.

#2 Joelf

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Posted 26 February 2015 - 09:31 PM

Hi Quiltfairy,

I'm so pleased to hear that you have tested negative for Hepatitis B and C and also that you don't have emphysema; it must be a relief for you to know that there is no problem with that, at least. :)

I've found that with Scleroderma I can feel happy just to be grateful for what I don't have, rather than worrying about what I do have!!

This bizarre disease can twist and turn, which is what makes it so difficult to diagnose correctly.

Kind regards,

Jo Frowde
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#3 quiltfairy

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Posted 26 February 2015 - 09:49 PM

Yes I can definitely agree with you .

 

I almost forgot my neck surgery has been rescheduled  for March 23rd; I will be glad to have that out of the way if no other emergencies happen with the family.



#4 Shelley Ensz

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Posted 04 March 2015 - 07:16 AM

Hi Quiltfairy,

 

I think we should throw a Sclero Happy Dance for you not having emphysema or hepatitis,, after all!  What an absolute delight, and I am sure it is a huge relief to you, too.

 

:emoticons-line-dance:

Unfortunately, when we are sick we have to have so many tests, and often get inaccurate or conflicting diagnoses. Just the spectre of having a test can hatch a whole slew of worry bugs. But what a delightful thing it is, isn't it, to have some things properly ruled out, and others properly diagnosed? 

 

I hope your neck surgery goes on without a hitch, this time!

 

:emoticons-group-hug:


Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.