How are you holding up while waiting? I know it's impossible to follow advice such as "don't even think of scleroderma for the next few weeks" as then it's all we can think about. However this would be a great time to try to focus your thoughts on nearly anything else, as much as possible. Such as devote yourself to an existing hobby or find a new one and see how much you can learn about it in the next few weeks.
I'm aware that doesn't work 24 hours a day, but the fine art of distraction is a powerful force for helping us cope with uncertainty and change. I try to put one "happy" thing on my calendar every single day, and then when my mind goes looking for trouble, I try to gently steer it towards all the fun that I have to look forward to. It doesn't have to be much, or even very fancy; they key for me is just defining it and putting it on the calendar. It can be as simple as "take a photo of a flower on Friday"...something, anything that is positive.
I know this tip might sound very lame, and it may not be useful for you at all, but it might strike a chord with someone else reading this who is stuck in circumstances similar to yours, and it might be the idea they need to be able to cope better while they are waiting for answers. The thing is, with scleroderma and many other chronic illnesses, the sheer mind-numbing waiting is a chronic condition itself. It never goes away! We are always waiting for the next appointment, the next test, the next batch of results, the next symptom; and while focusing on all those nexts, we can so very quickly and easily lose sight of our life, and our enjoyment of it, today.
It's very possible, and even very necessary, to continue to enjoy life -- and even increase our enjoyment of it -- even when our health is threatened or declining. But it does not come naturally! It requires awareness of the threat to our sanguinity and determination to carry our heavy load as though it is light as a feather; taking it seriously but not letting ourselves become serious, all at the same time.
Well now, where did I get off on this tangent? I just want to let you know, we all know how very challenging it is to even vaguely wonder about having scleroderma. And most of us would say the very worst time of all for us was when we were left up in the air, just wondering, especially if we had not yet thoroughly developed our stress coping skills!