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Update on Neck Surgery

neck surgery

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#1 quiltfairy

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Posted 06 May 2015 - 12:48 PM

I am doing good and my surgeon thinks I will recover fully, but it is a slow process especially for those of us that have Scleroderma. She had me on a 2 ilbs weight limit but has upped that to 15 ilbs and I can add 5 lbs every two weeks; I see my sclero doctor next week so I hope he thinks the same as my surgeon. I will post a picture of my x-ray in photos and I will also post what I gave my mother for mothers day; she really liked her new table runner.

 

Thinking about my mother; she will be 87 in July, she has a lot wrong with her and I think maybe she might also have Scleroderma as she has heart, kidney and liver trouble and also lung trouble. I have never mentioned it to her but I think at her age it would be better to not put anything more on her plate; she just got out of the hospital she went into liver failure because she was not getting enough oxygen and her lungs were taxing on her liver. She does have diabetes and has a terrible time staying away from sweets 

 

I hope all is well with everyone on this board: I think of everyone at night.

Bless each of you.



#2 Joelf

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Posted 06 May 2015 - 07:24 PM

Hi Quiltfairy,

I'm so pleased to hear that you're recovering well from your neck surgery; any operation can take a lot out of you and it's very good news that you're making such good progress.

I'm sorry to hear about your mother; it's possible that her problems could be Scleroderma related,as some types of the disease can run in families although it doesn't always follow. I agree with your thinking about worrying her further; it sounds as though she has enough health problems to worry about at her age. I do sympathise; I recently lost my mother and I know what a worry elderly parents can be.

We'd love to see the photos of your xray and mother's day present;the latter sounds beautiful.

Kind regards,

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#3 Shelley Ensz

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Posted 07 May 2015 - 08:46 AM

Hi Quiltfairy,

 

I'm delighted to hear that you are recovering well from your neck surgery!

 

I'm very sorry about your mom.  Sometimes old age itself can seem very scleroderma-like, as health issues multiply. It's pretty rare for scleroderma to run in families, but it does happen. For more info on that, see Genetics and Scleroderma. We also have some info on Diabetes.

 

Now I'll have to go take a peek at your photos!

 

:emoticons-group-hug:


Warm Hugs,

Shelley Ensz
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The most important thing in the world to know about scleroderma is sclero.org.

#4 Amanda Thorpe

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Posted 14 May 2015 - 12:13 PM

Hello Quiltfairy

 

I am glad that your neck surgery went well, it's routine surgery but one of those areas that a small mistake would be catastrophic. I don't know why you had it done but I hope whatever the reasons have been met.

 

My mother is 69 and also has health issues, starting with 4 heart attacks, the first of which was before the age of 50. I know that she has fibromyalgia but I bet my butt she also has an underlying autoimmune issue. Mind you what I want to know is why my identical twin does not have an autoimmune disease, if not scleroderma. I mean, really?

 

Take care.


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#5 quiltfairy

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Posted 14 May 2015 - 01:29 PM

Yes, the reason was because of migraine headaches since the first surgery in 2008 I blew out C5-C6 disk so bad that I was leaking spinal fluid. I had a hump on my back that was quite large and headaches so bad that at times I would shake. It was a work-related accident but the first surgery worked for 5 years. This was to fix the first surgery. They fused my neck. Thank you for asking.

#6 Amanda Thorpe

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Posted 15 May 2015 - 07:35 PM

Hello Quiltfairy

Wow, now that's a reason!

I had migraines on and off my whole life, from stomach arches as a toddler (apparently how they feel them), returning as a teenager, then again in my 20's, then 30's and finally returning the first two years of scleroderma.

At that time I had no internal organ involvement and the migraines were ferocious. I would vomit, interfering with my medication for scleroderma. I would have to have my husband take me to hospital for an injection every time and although it worked, it took longer and was less effective each time. Had I been able to lose either migraines or scleroderma at that time, I would have opted for the migraines!

When I started amlodopine for high blood pressure they went away for good. Now if I get a bad headache or one that lasts too long, I start to panic.

You have my hooray!, yippee!, alright!, way to go! and sincere good wishes for the successful surgery that freed you from the dreaded migraine. May they NEVER return.

Take care.
Amanda Thorpe
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#7 Buttons

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Posted 16 May 2015 - 05:34 AM

Glad to hear your neck surgery has gone well. It is quite scary having any surgery on your neck but with the relief it can give you is quite something. I have had 3 discs removed & spinal cord & root nerve decompression done and it made quite a difference to me so now I have titanium cages inplace so all is now fused.

 

Take it steady because its surprising how long it can take to recover properly.

 

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