Is there any help out there in Brisbane for the partners out there who are, like me, watching their husband slowly die of lung and heart complications with Scleroderma?
He first noticed a problem with his fingers (Raynaud's) in 2003 and was diagnosed with Scleroderma in 2005. It was progressing so slowly and he has lived life to the full but then 4 months ago his health declined steeply and now he is suffering so badly.
It's bad for him but it is also hard for me watching him this way. He doesn't want to live this way and why should he have to? We have been married for 47 years and have no children. What can I do?