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Did you know that exercise increases inflammation in systemic sclerosis?


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Interstitial lung disease and Scleroderma


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#21 Shelley Ensz

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Posted 07 July 2015 - 08:16 AM

Hi Ron,

 

Yes, that's absolutely a very official way to get an accurate oxygen saturation reading, but three of our members, including me, just virtually fainted at the very thought of taking our sats that way all the time. :wink:

 

Just out of curiosity, do you recall if your wrist draws showed a substantially different reading from the (finger) oximeter(s)?


Warm Hugs,

Shelley Ensz
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The most important thing in the world to know about scleroderma is sclero.org.

#22 Ron

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Posted 07 July 2015 - 02:25 PM

Shelley, First O2 test from an artery was the day I was admitted into the hosptial for my 30 day stay back in 1990, thats when I had 40 pounds of water in me from my kidneys not working properly and I had a real hard time breathing with all that water. The second one was a PFT in the hospital, they only used artieral blood for the O2 readings for PFT back then. The most painful part is when you are laying down, you have to apply direct pressure to the injection site and hold your arm up, that was a pounding pain, worse than the needle. You had to apply hard pressure for 10 minutes.

#23 Amanda Thorpe

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Posted 10 July 2015 - 04:36 AM

Hello Ron

Ain't it confusing! I remember trying to figure out the intricacies of my ECHO results back when they were bad, you needed a degree!

Anyways, you will know soon!

Take care.
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#24 jennuwhine

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Posted 10 July 2015 - 04:49 PM

I've been having breathing issues, it's gotten hard for me to breathe, but just got an x-ray, they said no problems. My blood pressure has been going crazy, low and then super high(a few days ago it was 220/180.) At times my heart beat is irregular. Still waiting to see a rheumatologist though. I just keep wondering how good or bad it is. Lol. I know there is some kind of lung involvement though. It's either scleroderma, Raynaud's or lupus related. I will be looking this up and hoping I don't have it.
Hope you get better really soon and forever.

#25 Joelf

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Posted 10 July 2015 - 08:15 PM

Hi Jennuwhine,

Is it possible for you to see your doctor before your rheumatologist's appointment? It's rather a concern that your blood pressure goes up so high (220/180) and is so erratic which possibly should have further investigation.

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#26 Shelley Ensz

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Posted 23 July 2015 - 03:17 PM

Hi Jennuwhine,

As it happens, you don't need to have lung problems in order to have shortness of breath. Many things can cause it, including heart problems, pulmonary hypertension, being overweight or out of shape, asthma, hyperventilation, and even anxiety.

Noting the exact circumstances each time it occurs can help your doctor identify the cause (s) for you. Please let us know how things are going for you, and what you find out in regard to this.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.