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X-ray false positive for pulmonary fibrosis


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#1 nobodyhere

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Posted 10 June 2015 - 01:37 PM

I went to the emergency room for high blood pressure and chest pains and got a chest xray and blood work to rule out heart attack. They said everything was clear and that I was very healthy. After returning to ER for PVCS and what was deemed a panic attack the nurse mentioned my first chest x-ray had signs of interstitial lung disease and he mentioned that I should see a specialist. I was upset and asked to talk to a doctor in the ER about my xray. After a long wait - they brought an xray machine to my room and did another xray and then after another long wait they said the xray was clear - not to worry. I saw my primary doctor the next day and he showed me the xray and the radiologists diagnosis and he said that he is concerned about my anxiety disorder but my lungs are fine. Is this kind of false reading of ILD on a chest xray at all common? How does that happen?

#2 Shelley Ensz

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Posted 10 June 2015 - 01:55 PM

Welcome to Sclero Forums. I'm sorry things have been so confusing with your health care.

I don't know what the problem is. Fibrosis shows up pretty clearly on x-ray, at least, the ones my doctors have shown me. I wasn't under the impression that it was a difficult thing to identify.

 

Maybe someone else can make sense of it. I don't blame you for being perplexed by it.


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#3 Joelf

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Posted 10 June 2015 - 08:19 PM

Hi Nobodyhere,

Welcome to these forums!

I'm sorry to hear that you have concerns about interstitial lung disease; I have ILD and I must say that when my lungs were xrayed there was absolutely no doubt that there was a severe problem, as there was inflammation (ground glass) about two thirds of the way up my lungs. I also presented the classic symptoms of shortage of breath and a dry unproductive cough, which helped my consultants to arrive at a diagnosis.

Like Shelley, I've never heard of a false positive xray for ILD and I do wonder if the first xray could perhaps have been a mistake ( I had an xray done of my hips, prior to a hip replacement operation, which seemed to bear no relation to the symptoms I was suffering and I did wonder if it was actually the correct xray!)

Please note that apart from a fondness for telling my doctors how to do their job, I have no medical training, but as it seems that your xray is now clear and in the absence of any noticeable symptoms I would suggest that perhaps you should go back to your doctor again and explain your fears to him.

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#4 Amanda Thorpe

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Posted 13 June 2015 - 01:59 AM

Hello Nobodyhere

 

Can't say much about the x-ray mishap but wanted to say this sort of lack of clarity can be very distressing for patients, on the other hand, doctors seem to dismiss it. I guess they must see an awful lot of it and know it amounts to nothing but it's not nothing to the person who's at the centre of the mishap!

 

I hope you get some clarity.

 

Take care.


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#5 quiltfairy

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Posted 13 June 2015 - 09:34 AM

Did anyone else watch the show on the television the other night about misdiagnosis; it was almost scary like your x ray being a false positive. If I were you I would get a second opinion. I am doing that with my ears; I get fluid in my ears for no reason, there is no infection or anything like that and my doctor keeps saying it is sinuses or another one of my allergies. She has said the same thing since 2007 and now I am finally going to see an ear, nose and throat specialist on Monday. My sclero doctor said my ear canals were smaller than normal, which could be caused by the scleroderma.

So please get that second opinion.

I also wish you good luck.

#6 Shelley Ensz

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Posted 25 June 2015 - 08:06 PM

Hi Quiltfairy,

I have tympanosclerosis, which is an autoimmune ear disease. The scarring it causes creates an optical illusion of water on the ears, and it can fool very experienced doctors. So maybe you have water on the ears...or maybe you have some scarring. It will be interesting to hear what the ENT has to say. Read more at Autoimmune Ear Disease.

 

:hug-group:


Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.