Sorry for delayed welcome, you're in the best place to get the support and information you need and want from the very people best placed to give it...those of us with scleroderma...our family...our friends.
Firstly, may I suggest that you restrict your concerns to "your unhappiness" rather than "everyone's", especially as the "everyone's" are adults capable of managing their own "stuff". With all that scleroderma has already brought you, may well in the future, you have enough "stuff" of your own without picking up other people's. Emotional adjustment in scleroderma, because of scleroderma, from scleroderma, with scleroderma, however you phrase it, you are already going to have to manage your own emotions so leave others to manage theirs. I insist on it!
I totally encourage you to get a referral to the Royal Free, one thing you don't want or need is hassle with your medical team and having your care under a team of scleroderma expert is one way to make sure you don't.
I see that you take Ibuprofen, a nonsteroidal anti-inflammatory drug (NSAID) however, for people with a chronic illness, NSAID's are not always a good idea long term. I don't know if you have reflux, if so then Ibuprofen will aggravate this symptom.
I note that your diagnosis is limited scleroderma and you're quite right in that it's slower in onset, progression and outcome but it is still a type of systemic scleroderma so nothing to be taken lightly. Of course, as Jo has already said, and as I, with diffuse, say, you can still live a perfectly wonderful (albeit different beyond all comprehension) life with scleroderma. Please post your questions/frustrations as they arise and remember that we're all in this together!
Take care and keep posting.