I recently saw a post on another site regarding smear tests being very painful but I haven't seen any posts or literature regarding how Scleroderma affects the 'vagina' on this site so I wanted to share my story.
In summary I was diagnosed with Scleroderma in 2008, had a crisis in 2011 which was diagnosed as heart and lung failure resulting in having myocarditis and lung fibrosis, started new treatment regime including cyclophosphamide, rituximab and mycophonolate (which I still take) and I am delighted to say I have not only come through the other side but there has been evidence of the lung improvement.
I lead a good life, am not as fit as I once was but it doesn't stop me getting on, however............there are still symptoms which I find frustrating such as Raynaud's, reflux causing regurgitation (despite being elevated in bed) and even more frustrating is how my sex life is being affected. My GP is very understanding but is reluctant to say it is due to Scleroderma, she thinks the cause is due to dryness (post menopause) but it doesn't matter how much lubricant I use, the pain is excruciating and unbearable and even causes bleeding. Luckily I have a very understanding husband and there are lots of other ways to be intimate
It would be interesting to hear if other people have similar problems and how they overcome them?
Have a great day