After what seems like an eternity, we have finally gotten all results from X-rays, MRI, and neurosurgeon on Gareth's neck issues. The MRI showed severe neural stenosis/compression of spinal nerve from C3 to C7. Myelomalacia is also present from C4 - C6. The severity of the arthritic degeneration has the doctor confused. He showed none of these changes on his neck X-ray 3 years ago -- none of it!! I have Googled to see if this is an autoimmune issue connected with his UCTD but couldn't find anything. Any thoughts or words of wisdom?
The doctor said his severity is the reason for the chronic neck, shoulder, and leg pain/weakness.
The good news is that the doctor remembered Gareth was going on vacation and said he would schedule surgery after we get back. Surgery will be in late October, with no brace afterwards, but 8-12 weeks of recovery at home. I said to my hubby *why can't he just break a leg or arm, like a normal person his age?!?!?*
Thanks to all for your help and advice,
Mom to Gareth, 27 years old, DS/ASD