Visiting after several months - sorry about it, but I always remembered this group as it has been tremendously supportive.
According to my Rheumatologist, my scleroderma is damaging my internal organs. I had gone through partial fundoplication surgery in 2008 and it has failed as stitches taken to tighten valve between stomach and esophagus are broken and my acid reflux is going through roof. Visiting to UCSF and they are recommending the surgery again. My lung volume has gone down significantly and that has alarmed UCSF. UCSF (University of California at San Francisco) is one of the top hospitals. Three doctors went through my visit, studied all documents as far as 2008.
As per their recommendation going through testing (Manometry, PH probe, CT scan, Fluroscopy, blood tests, etc.)
But, my primary issues are extreme Neuropathy pain and my pain management specialist has run out of options, and digestive system disorder.
I am on long term disability and do not see any signs to come off it.
Best wishes to all friends.