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Sleep Apnea Results


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#1 Sheryl

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Posted 06 April 2007 - 04:10 PM

I am finally back from Florida and I have my own computer once again. I hope everyone has a Wonderful Holiday Week full of festivities. I went to get my results of the sleep study I had in January. I found out that I do indeed have sleep apneas. I had already figured I had problems. Just needed to get the results. My oxygen levels drop alot throughout sleep. My scleroderma specialist figured out that my extream fatigue might be because of a sleep disorder. Oxygen levels are suppose to be between 94 and 100% when sleeping. Mine were between 86 and 92% Anyways, the center that did the study will see me once again and I am supose to get a C Pap machine. I really haven't figured out how to read all of my results. Did anyone else get their results from the studies they had done? I might have missed some correspondence while I was away. Sheryl
Strength and Warmth,
Sheryl

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#2 LisaBulman

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Posted 06 April 2007 - 04:15 PM

Hi Sheryl,
Welcome back! I am glad you finally have the answers you were looking for. My hubby has sleep apnea and is supposed to use a cpap but he can't stand it or breathe through it. They suggested surgery because he has a deviated septum, but he is a big baby. Hopefully it will give you some relief and some sleep!

Hugs,
Lisa
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#3 summer

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Posted 06 April 2007 - 05:13 PM

Hi Lisa,
I had surgery about 12 years ago as a result of a deviated septum, I found that it was a waste of time as I am still breathing through my mouth at night time when I sleep as I cannot get enough air.

Kind regards
Celia B)

#4 janey

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Posted 06 April 2007 - 05:29 PM

Sheryl,
Welcome back! I hope you had a great trip. I bet you loved the warmth!

I have the same problem you have - my O2 levels drop into the 80%'s about 65% of the time when I sleep. We determined this by having me wear an oximeter all night. My pulmonologist then put me on 2L of O2 when I sleep. Two months later, in January, she had me take a sleep study. As part of the sleep study they had me off oxygen the first 3 hours, then had me finish the study with O2. During the first 3 hours I had multiple apnea episodes when I was on my back and a few less when I slept on my side. Once they gave me the O2, I had only 2 apnea episodes on my back, and zero when I was on my side. The doctor said that the oxygen was doing the job so no need for a Cpap. I was happy for that because an O2 cannula seems easier to deal with than a Cpap (as long as you have a place to put the machine). My brother uses a Cpap and it appears very disruptive for a good night's sleep. I'm sure like most things however, that it's something you get use to.

You should have the sleep study doctor go over the results with you. It sure helped me understand it better. Lots of information!

Hope this all works out for a much better night's sleep.

Big Hugs,
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#5 kiwimum03

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Posted 06 April 2007 - 05:36 PM

Hi Sheryl, welcome back!!

My Hubby has severe sleep apnea and has been on his CPAP for about 5 months now.
Initially it didn't help and so he had to have his tonsils out and his soft palate brought forward.
that operation has helped some, but in 12 weeks he will have his nose fixed too as he can't breathe through it. He also needs to have his tongue narrowed (that doesn't sound fun) but that is if he does not improve.

It has taken him a few months to get used to his CPAP, and he would rip it off many times during the night, but now he has gotten used to breathing through it, he is okay to wear it, it just takes some getting used too.

My husband has a very severe case of apnea , and they said that he was lucky he got treatment when he did. I can't remember the results but, once they got them back after his testing, he went into surgery for his throat and palate within a week, which showed the urgency.


when you first try the machine, it is hard to breathe through the air coming at you, but just relax, and you will get used to it over time. I tried my hubbies to see what it was like, and I was quite surprised at the force of the air, but of course it has to keep your airways open!!!
take care,
Irene

#6 Laura

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Posted 07 April 2007 - 04:33 AM

Hi Sheryl,

I've been wondering how your test turned out. I found out that I also have sleep apnea. I have had my CPAP machine for about 6 weeks now. I haven't had any problems wearing the mask, I actually think it's comfortable. I was hoping it would help with the extreme fatigue I feel but it hasn't. I do wake up much less during the night, and I feel like there is a better quality to my sleep. I just wish I felt better.

When I first put it on at home I couldn't stand it. I just kept telling myself breath in and out. You also have to keep your mouth shut and you can't talk with it on. If your mouth opens it's very uncomfortable.

Let us know how you do with it.

Take care,

Laura

#7 kiwimum03

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Posted 07 April 2007 - 11:16 AM

Hi Laura,

I am just curious, do you use the CPAP with just the mouth piece, or the whole full mask? I ask because you said you need to keep your mouth shut.

My husband tried just the mouth piece but found it very uncomfortable, so switched to the full mask.

hugs,
Irene

#8 Laura

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Posted 07 April 2007 - 12:22 PM

Hi Irene,

I use the mask that just goes over my nose, not the nasal pillow things or the mouth piece. Does your husband have trouble sleeping with his mouth closed? I ask because at work when we put someone on CPAP or BiPAP and they can't keep their mouth shut we switch them to a full face. It seems like the full face would be harder to get used to. I know a lot of people who have had luck with the nasal pillows.

What is your husbands pressure? Mine is only 8. I was told that that is very low. Maybe that's why it's not so bothersome for me. It is a very uncomfortable feeling when you open your mouth. I learned not to ask my patients questions when they have their's on. I have pulled mine off several times during my sleep early on. Hopefully that has passed.

I hope your husbands nose surgery goes well and he feels better afterwards.

Take care,

Laura

#9 Sheryl

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Posted 07 April 2007 - 12:45 PM

Laura,
Is the burst of air that is shot into the mask cooling to the face. With your own inhaling and exhaling into the mask doesn't moisture set up inside the mask and make your face cool? I am wondering if I can ask for the cannula and go for just the oxygen. That machine makes its own oxygen. It might even be cheaper than the C Pap machine. I think I might like having the quiet effect of putting the oxygen machine in another room and running a long hose into my room. Less noise. I can't even stand the noise of the frogs outside mating in the spring. I have to wear ear plugs. I am noise intolerent. I even keep the sound off on my computer. The absense of noise is wonderful. I bet when I see the people at the sleep center they will say I have to make another apointment with a pulmonary doctor if I want the oxygen verses the C Pap machine. If nothing gets rid of the fatigue I guess I would rather use nothing and continue as I have. Catching sleep as it comes. I knock down solid sleep in the middle of the afternoon for 2 hours is more restfull than 7 hours tossing and turning in bed all night. Well, I have something else to ponder on. Janey, I do like your answer. It gives me a second option. Thanks for responding. Sheryl
Strength and Warmth,
Sheryl

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#10 kiwimum03

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Posted 07 April 2007 - 02:46 PM

Hi Laura and Sheryl,

My husbands CPAP is quite quiet, I thought it would bother me, but I was surprised at how quiet it was.

His pressure is 14, they have just upped it from 12 as they said 12 wasn't doing enough. He also has the CPAP with the humidifier so that he is breathing warm moist air and not cold dry air, he tried both and found the humidifier one much more comfortable.

Laura, my husband can't sleep with his mouth shut, because of his nasal problems, which is why he has the full face mask. It did take him a while to get used to, but since they threatened him with a Tracheotomy he was more obliging to give it another chance.
His apnea is very bad, and I am sure it attributes to alot of his memory loss during the day. He also has Schizophrenia, which is originally why we thought he had memory loss and poor concentration, but now finding out how bad his apnea is, that explains alot too.

We certainly hope that the nasal surgery helps some, thanks for the warm thoughts.

hugs,
Irene

#11 Sheryl

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Posted 08 April 2007 - 12:44 AM

Irene and Laura,
Thanks for the information. I guess I will learn more when I go for my next visit. Will, I have to stay over night again so they can check the pressure on the machine and see what type I need. Just by your letters I would definately want a warm moist air bursting down on my face and in my nose than something cold. If my room is the least bit cold my nose gets cold and I am like a leaky faucet. I sleep with a mouth guard. I do have to open and stretch my mouth every couple of hours. Does the nose one push in enough forcefull air to keep that flap in the back of the throat from flapping closed. I was thinking of going with oxygen and the cannula if I could. My sisiter said if my flap keeps closing and stays closed from 10 to 14 seconds all night long that I need the burst of air that keeps the flap open. I won't even get the opportunity to have a choice. I guess, I will have to take what ever my insurance offers. Choices Choices choices?

Happy Holiday Everyone, Sheryl
Strength and Warmth,
Sheryl

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#12 Margaret

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Posted 09 April 2007 - 11:48 AM

Hi, Everyone ,~

Gareth has been using a C-Pap machine for over 3 years with little difficulty. He goes back and forth between the nasal plugs and the full mask. Unfortunately, it has done nothing for his fatigue the past 6 months.

Take care, Everyone.
Margaret

#13 Laura

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Posted 11 April 2007 - 02:00 PM

Hi Sheryl, Irene, and all

I don't notice that the air coming out of my mask is cool. I do sometimes get condensation in my mask. I was told that it was because my room was cold and my breaths were warm. Some people use humidity so the air is moist and warmer. I don't know about just getting oxygen, I've never heard of that before. When you go for your trial just try to relax. Once they put the mask on try not to focus on it being over your face. Just try to take relaxing breaths in and out. My machine is very small and quiet compared to the ones we use on patients in the hospital. You may need ear plugs though if you can't stand any noise. There is a hum to it. I also sleep with a fan going in my room. I can't stand it quiet. I also have a mouth guard that I wear.

I hope you find it as comfy as I do. I had a hard time with how it looks and about what my husband would think. Afterall it's not the most romantic thing. He's been really good, plus he sleeps better because I'm not flopping and twitching all night like I used to. I never really snored, I had really bad restless leg syndrome and I would twich a lot. I do have a better quality of sleep, but the fatigue is still present.

Irene, I hope your husband is doing good with his mask. A trach is such a major thing. I have seen 2 patients where I work end up with them. They have actually done very well since.

Please keep us informed on home things go.

Take care,

Laura

#14 Sheryl

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Posted 13 April 2007 - 02:29 PM

It's me again. I received information in the mail today. Looks like I do have to go and spend another night at the sleep lab. I didn't realize I would do another overnighter. This time using the C Pap machine and testing to see what pressure I will be needing. I go on the 24th of April. Wonder if I will go home with a machine the next day. I called the sleep center on Monday. They said my doctor had to call them. They didn't have the machines. I waited until today with no word from anyone. So, I called the hospital back to see if my doctor did anything about the situation. Haven't heard from them. But, I went to my mailbox and I received the packet with my show up sleepover date. Strange, that the one hand didn't know what to do with the other. This time I won't leave the sleep study center without at least knowing the next step. I will have to discuss this with my husband. He is going to blow his top. He thinks all of this is a bunch of hogwash. And it is spending alot of our money. That is the hardest part for me. A part time job may be in my future. We didn't plan all these medical expenses when we retired. I went to the dentist yesterday and he negelected to tell me I used my allowance for the year already. I had to pay 300.00 dollars for a teeny filling. I could have waited until next year, it wasn't even that bad. It was a tooth next to my front teeth so I guess a white filling is expensive. Yikes! It's not my fault. In the future I will check everything before having services preformed. Anyways, that is why I am afraid to say anything about my sleepover. Sheryl
Strength and Warmth,
Sheryl

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#15 Margaret

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Posted 14 April 2007 - 02:23 AM

Hi Sheryl ,

Instead of going into the hospital for the sleep study, my husband had a machine at our house and hooked it up for a couple of days. Maybe that would be a cheaper alternative. Having sleep apnea is not 'hogwash.'

Take care, Everyone.
Margaret

#16 Sweet

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Posted 14 April 2007 - 08:38 AM

Hi Sheryl and welcome back!

I'm sorry you have sleep apnea, but I bet you are glad to find something that may help. I know of a few people that use a C-PAP at night and they just love the results!

Best to you.
Warm and gentle hugs,

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#17 Sheryl

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Posted 14 April 2007 - 10:52 AM

Well, my husband popped his cork. I let him rant and rave and tell me I was a hypocondriac. I just stood there. When he was done he walked away and about an hour later he came back to say that I could do what needed to be done. I just turned around and said, "you're absolutely right I will do what needs to be done". I can't believe it. I didn't let him get the best of me. I just let him rant and afterwards I had a feeling like I have to be strong and help myself. I can't depend on him to do whats right for me. Now, or in the future. I now know how Jennifer felt when her new husband said what he did. It takes awhile to push aside the heartfelt verbal slamming. I still can't believe he stood in front of me and said that I was fine and the doctors were wrong, there is nothing wrong with you. You just don't appear to be sick. I guess I will have to stop laughing things off and hiding my inhalers and most of my medicines. Oh, thats another complaint of his. I take too many medicines and that is what is most likely causing other ailments. Ha! That is why I tell him as little as possible. As long as I can handle this disease and others by myself I plan to continue to do so. No more ranting from me. Thanks though for reading and listening to me. Sheryl

#18 Sweet

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Posted 14 April 2007 - 03:25 PM

Oh Sheryl,

I am so sorry you are not getting support from your husband. That must be so very hard. Does he go with you to your doctor appts? I wonder if that would help, maybe he needs to hear it from someone other than you?

We're here for you.
Warm and gentle hugs,

Pamela
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#19 Sheryl

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Posted 15 April 2007 - 01:30 AM

Hi Pamela,
No my husband doesn't go with me to apointments. He went the first time for a confirmation that I did indeed have Scleroderma. He sat out in the lobby and didn't even bother to come in with me to meet the Doctor or hear what she had to say. I did try to get him to come in. He just decided to sit so that is why I don't give him any information unless he asks me point blank about something. I had to tell him about going back in for the overnite stay. I just had to time it right. I sure am glad I didn't get the packet of information until after I told him the price of my Dentist apt. When I worked I took care of things and paid for things and he was never the wiser about most things. Now, being retired he sees everything that comes in or out of the house. Oh Boy! He asked for a hair cut most bashfully last night. And even said, " you won't slit my throat will you". Guess he was a bit worried I hate some very hateful feelings. All is well for now. Sheryl
Strength and Warmth,
Sheryl

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#20 CarriePan

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Posted 15 April 2007 - 04:50 AM

Dear Sheryl,
YAY for you!!! I find shopping cures whatever LOL Sometimes I feel like I'm a hypo but I know inside I'm not. For those who poo-poo or lessen what I have, I've learned to not waste another breath on them because ya know what?? They don't deserve to waste my prescious air! pfffffft
Just a thought B)
Take care~
Carrie
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