It is a long time since I started a new topic but I have a question. How many of you out there have opted for a Stoma as a way of coping with Bowel Incontinence?
I first asked a Colorectal Surgeon (Mr. A) to perform this surgery in 2011 and he insisted that first we should try an SNS. I agreed although others had assured me it would not work. Of course they were right and earlier this year Mr.A admitted to me that he had wanted the opportunity to try out the SNS with some Systemic Sclero. patients. Apparently he did 3 surgeries and none of them have been successful so now he says that he will give me a Stoma whenever I am ready.
Well, now I feel ready but would like a bit more feedback from others who have gone the same route. There are sites on the internet talking about this subject for all sorts of reasons but I haven't seen any coments or stories from any Scleroderma ladies.
If you have a Stoma or are contemplating one, perhaps we could talk about it here.