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Biomarker for Diffuse Scleroderma skin has been discovered!


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#1 Lisa D

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Posted 25 October 2006 - 03:44 AM

Hi Everyone,

My son has just been diagnosed with Morphea/Localized Scleroderma. He is 7 years old. It's good to know there is somewhere I can go to talk to people. This has been very scary for me. He still needs to undergo some bloodwork to make sure that the biopsy results are correct.

Well, I just wanted to stop by.

Thanks,
Lisa

#2 janey

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Posted 25 October 2006 - 04:13 AM

Lisa,
Welcome! I'm glad that you found us but sorry for your having to be here due to your son's diagnosis of morphea. We do have several people on this forum with morphea so I'm sure you'll hear from some of them.

I'm providing you with our link to the morphea (localized scleroderma) page. It provides you with information on diagnosis, treatments and much more.

Please keep us informed on how your son is doing. And Again, Welcome.

Big Hugs,


Janey Willis
ISN Support Specialist
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International Scleroderma Network (ISN)

#3 Heidi

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Posted 25 October 2006 - 04:16 AM

Hi Lisa,

Welcome to the Forums! I am glad you found us, but so sorry it is because ofyour son's diagnosis. I am not sure if you have read much about morphea, so I am going to give you a link to a page on our Sclero A to Z website which will give you some information: Limited Scleroderma: Morphea

Please do keep us posted on what the biopsy shows. I hope you will come here and post often. I am sure you will find everyone here very warm and supportive, and very willing to provide information and advice when we can.

Warm wishes,
Heidi



#4 Beanpole

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Posted 25 October 2006 - 04:44 AM

Welcome to the family Lisa! Hope all goes well for you and your son. Be encouraged and remember that you are not alone.

Peace,
Michelle
Michelle C. Hunter
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International Scleroderma Network

#5 Sweet

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Posted 25 October 2006 - 04:51 AM

Welcome Lisa!

You will find a lot of support here in addition to valuable information. We look forward to supporting you!!!

Love Sweet

Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#6 Lisa D

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Posted 25 October 2006 - 06:05 AM

Thank you for the warm welcome Janey and the link. I'm not sure how often I'll be able to check back here, but I will as often as I can.

#7 Lisa D

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Posted 25 October 2006 - 06:08 AM

Heidi, thank you for the warm welcome and the link. I have done some reading, as have many members of my family. I have also found out that my third cousin was diagnosed with Morphea 40 years ago when she was 7, and has lived a productive life, which was very hopeful news when we first confronted this.

Thanks again,
Lisa

#8 Lisa D

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Posted 25 October 2006 - 06:09 AM

Michelle, thank you for the encouragement and the welcome. It is good to know that there is someplace I can go for support. I will hopefully be able to come back here often.

Lisa

#9 Lisa D

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Posted 25 October 2006 - 06:10 AM

Thank you Sweet for the welcome. I know I will find the information useful on this forum.

Lisa

#10 LisaBulman

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Posted 25 October 2006 - 10:09 AM

Hi Lisa,
Welcome to the board! I am so sorry you are here because of your son's diagnosis. We are all here to support you and to give you advice when we can. I have been dealing with this illness for over 13 years and my worst fear is having one of my girls being diagnosed. Please stay strong and come here often to visit!

Hugs,
Lisa
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