I am still seeing how much damage has been done over the last 15-20 years. They told me I had chronic shingles with chronic fatigue and adult attention deficit disorder (ADD). Has anyone been in this same situation? I have always had ADD but now the other stuff makes so much sense.
It irritates me that I may have lots going on when so much could have been done, but trying to stay positive and continue to be a single mom and work a full time job. Oh, get this, I am a medical assistant in a big office but never got the right diagnosis even working there. It makes me realize how people overall don't know about scleroderma and try everything else, yet never thought of a rheumatologist!! I want to go back to school and become a physican assistant so that I can prevent this happening to someone else!!
I can't really show my true feeling with the others truly understanding because I don't look sick.