My Echo yesterday showed fluid around my heart. Although I am not happy to hear this I am happy to possibly get an answer as to why I might be so short of breath lately. Although other tests had remained stable up until now my pulmonary function has declined (DCLO is down to 17%). My previous Echo in July did not show this fluid. I was taken off a diuretic in May due to the dehydration from diarrhea and need to go back on it. I also have to repeat the Echo in 2 weeks.
I saw a new rheumatologist yesterday at Columbia Medical Center and like her but will continue seeing the one I have used for the past 11 years as well. I am working on getting a team of doctors at Columbia. Tomorrow I am supposed to repeat the 6 minute walk test and see a gastroenterologist.
It's always something with this disease...