Hi, I'm new to this forum. I first became ill in January 2015 with chronic insomnia and faintness. Doctors put this down to anxiety. By August 2015 Raynauds got really bad (I had it earlier in the year but it worsened dramatically).
At that point a blood ANA test confirmed Limited Systemic Sclerosis which was then confirmed by my Rheumatologist following a barium meal swallow test showing esophegul dysmotility.
Looking back, I had been getting cold hands in the winter for about 5 years and simply put it down to getting older or walking in colder places than I previously did.
My hands and feet (often my arms and legs too) seem to always be cold and everything I touch (including water) feel freezing. This and the faintness seem to have stopped my life in its tracks. It's even hard to go outdoors now it is winter because the cold and the wind seem to get right through by shoes, trousers and gloves even though these are all thermal lined.
My bowels now seem to be affected as I'm needing to use a laxative every day and everything I eat and drink makes me bloated.
I tried rubber gloves to wash the car, do washing up etc. but the cold water seems to even penetrate these. There seems to be so little I can now do and the whole thing seems to have progressed very quickly - I was pretty much my normal self until Jan 2015 and now feel almost useless.
Is it normal for a disease like this to affect someone so rapidly - less than a year to go from a normal individual to being such a useless wreck - I thought these things tended to develop more slowly?
The constant faintness is particularly worrying - does anyone have anything to say about this or anything that might help?
Thanks for reading - I will post updates as they happen.