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Anti centromere antibodies with no symptoms

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#1 madi6214



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Posted 30 January 2016 - 02:32 PM

I am 20 years old and went for a routine physical after having a baby. My ANA was tested on accident. It came out positive 1:80 homogenous. I was sent to a rheumatologist who did a full blood panel. My ANA remained the same but I also tested positive for ACA of 1.9. Is it possible to have ACA antibodies and not have scleroderma? Or will I likely develope this disease in the future?

#2 Joelf


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Posted 31 January 2016 - 03:24 AM

Hi Madi,


Welcome to these forums!


Basically, ANA tests can be positive in people who are entirely healthy, and negative in people who are entirely sick. By themselves, they do not automatically indicate disease. The most important thing, by far, are your clinical symptoms. It is perfectly possible to have positive antibodies and yet never go on to develop full blown scleroderma and vice versa, as many of our members can testify, so although blood tests have their uses, they are by no means the be all and end all when it comes to diagnosing scleroderma.


I've included a link to our medical pages on Diagnosis of Scleroderma and What are Autoantibodies? which I hope you'll find helpful and informative.


Your rheumatologist will possibly be doing more tests to obtain a clearer picture and obviously, I can't predict whether you will develop scleroderma in the future, although we do have numerous threads on this very subject. Hopefully, it won't progress any further for you than the positive blood tests, but should you develop further symptoms then we do recommend that you consult a listed scleroderma expert, as specialist knowledge and expertise is required to deal with this complex disease.


Kind regards,

Jo Frowde
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#3 Sweet


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Posted 01 February 2016 - 08:48 AM

Hi Madi,


Welcome to the forums. I'm sorry to hear about your recent tests. However like Jo stated many healthy people can have a positive result. She gave you a few good links, I hope you find them helpful. 

Keep us posted!

Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#4 Shelley Ensz

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Posted 01 February 2016 - 09:34 AM

Hi Madi,


Welcome to Sclero Forums. Like Jo said, scleroderma is an illness that requires certain symptoms for a diagnosis. It cannot be diagnosed based on blood tests alone. Since you are symptom-free at the present time, I don't see anything to worry about.  It would be normal for your doctor(s) to monitor you annually (or whatever), just to be on the safe side.


That said, they recommend that anyone who may be at risk of someday getting any serious disease (which is most of us, really!) might be wise to acquire life insurance or disability insurance (etc.) -- just to be on the safe side, especially if they have dependents to provide for. Plus, insurance is incredibly cheaper when we are young and healthy, so it is a win-win!


So if I were you, I'd focus on getting good insurance, and regular (but not excessive) health monitoring to catch anything early. Then I'd work really hard on putting the issue in perspective so that it didn't cause or exacerbate any anxiety, which can reduce our quality of life much more than scleroderma or other ailments.



Warm Hugs,

Shelley Ensz
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