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En Coup De Sabre


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#1 Doris Rumore

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Posted 02 February 2016 - 05:12 AM

I have been told this is one of the rarest forms of scleroderma. I have never met anyone other than myself with this type. I also have numerous other types of auto immune conditions.

 

Any info would be appreciated.

 

Thank you.



#2 Joelf

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Posted 02 February 2016 - 11:03 AM

Hi Doris,

 

Welcome to these forums!

 

I'm sorry to hear that you are suffering with En Coup De Sabre.

 

It is a rare type of localised scleroderma and so I thought that you might find a link to our En Coup de Sabre Patient and Caregiver Stories helpful and interesting.

 

Kind regards,


Jo Frowde
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International Scleroderma Network (ISN)


#3 Doris Rumore

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Posted 04 February 2016 - 02:28 AM

Thank you so much. I'm seeing my Dermotologist again today. I'm looking forward to hearing any updates they may have on my condition.

#4 Doris Rumore

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Posted 11 February 2016 - 03:51 AM

Nothing new for linear scleroderma per my dermatologist.

#5 coolcoup

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Posted 27 May 2016 - 06:47 AM

I was just diagnosed with En Coupe de Sabre.  Wondering how aggressively to treat.