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17 with Linear Scleroderma Morphea? Collagen question?

17 linear scleroderma young collagen

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#1 BenjiB123

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Posted 03 February 2016 - 12:06 PM

Hi everyone, my name is Ben, and I've had a dark orange colored rash that is dots surrounding my nipple on my chest and that goes around to my back. I have a lot of things that can be linked to autoimmune disease. And I am very scared of that, but also there are so many questions I have about this condition. Maybe some of you guys can help clarify things for me?

 

1)I know I am young to be using collagen, but I actually do put it on my face. It has other moisturizers in it. And I am scared that it may cause it to come back on my face. Mine is currently on my chest and is probably my only physical insecurity. I heard it can deform people so I would die if it came back on my face. Does anyone that has morphea also use collagen? I heard that the cause may be an overproduction of collagen so should I stop using collagen on my face?

 

2)My dermatologist said it is very unlikely that it will occur any place else. I noticed the "rash" when I was like 7, but just went to a real dermatologist to get it checked. I was misdiagnosed as having tinea versicolor. She said it looks like a confetti-type localized scleroderma and said that it was morphea. Does this sound accurate? It looks like orange colored dots surrounding my nipple and going around to my back. I don't feel an indent or anything. It's just like a discoloration of skin. I've had it for as long as I can remember, so I don't remember if it felt hard when I first got it because it has been so long. No tinea versciolor treatment(ointment or medication) or home remedy has ever worked on this. It has burned my skin extremely badly. But she is a CHILDREN's dermatologist, said that it was morphea and linear scleroderma, the explanation kind of sounded all over the place. She said it is indented but I didn't notice an indent. Also we had trouble finding pictures that looked similar to mine. Should I get a 2nd opinion?

 

3)I am planning to hopefully get laser done on this when I'm older. I am not a usually insecure person, but it has stopped me from going swimming. I tell people that it's a birth mark so they will understand, but I'm always worried people will think its catchy. Even I thought it was for years when I had no idea what it really was. Is there any waterproof makeup that you guys could suggest for this?



#2 Joelf

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Posted 03 February 2016 - 11:11 PM

Hi Ben,

 

Welcome to these forums!

 

I'm sorry to hear that you have worrying patches of skin discolouration, which may or may not be localised scleroderma. In the dim, distant past when I was seventeen, I would have been very worried about possible disfiguration, so can understand your concern! :wink:

 

In order to give you some more information and help you with your queries, I've included a link to our medical pages on Collagen (it refers to injections, but does cover your enquiry) and also Tattoo Concealer makeup (which again may be of use to you.)

 

Certainly, if you are not happy with the diagnosis given by your dermatologist, then it may be worth getting a second opinion; if this skin complaint is scleroderma related, then I would recommend consulting a listed scleroderma expert, as this complex condition does require specialised knowledge and expertise.

 

Kind regards,


Jo Frowde
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#3 BenjiB123

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Posted 04 February 2016 - 06:00 PM

Thank you so much for the response. I read about the injections and how it's not recommended, but I am actually using a face cream, and it's not anywhere near the skin discoloration(which is on my chest). My only worry is that I would cause it to happen on my face if I keep applying the collagen since I heard the cause is linked to collagen build up or something.

Is there a test for localized scleroderma? Is it the same thing as morphea? I was told that I have linear scleroderma, and morphea, and that mine is like a confetti type(mostly dots with a couple of streaks of the orange colored skin) but no tests were ever done. She said it looked indented, but it doesn't feel indented. She is a children's dermatologist, and the diagnosis did seem all over the place. It was morphea, linear scleroderma, and it all really confused me. She said I could get a 2nd opinion. I have seen photos online that do look similar to mine but most of them do not at all. She also told me that it'd be a rare situation already inside of a rare situation for it to come back anywhere else, but I never brought up to her about the collagen cream because I wasn't told what caused it, just that it had no cure. She also said I could get a 2nd opinion if I wanted to and look into laser which I will do if there's no easier way. The collagen cream makes my face feel good but I'm nervous to use it now. I never even knew collagen injections were a thing, haha!

I checked the links you sent(cause linked to gluten sensitivity, and I have that, how ironic lol) and I will save that for the future, as I'll be moving out of my house soon .

 

Thanks so much for the response. This is all very new to me.



#4 Joelf

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Posted 06 February 2016 - 09:26 AM

Hi Ben,

 

Morphea is a form of localised scleroderma and when "linear morphea" is used more literally, it means that there is a mixture of both types — linear and morphea, occurring together in combination.

 

I've found another camouflage make up for you, Dermacolor Camouflage  by Kryolan. It's an example of longlasting professional makeup, as used by actors and models. When properly applied, it can provide suitable coverage for skin colourations such as telangiectasia, birth marks, and morphea scleroderma.

 

UVA1 phototherapy is now the recommended first-line treatment for morphea, so it may be worth you suggesting this to your dermatologist.

 

Kind regards,


Jo Frowde
ISN Assistant Webmaster

SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager

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#5 BenjiB123

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Posted 06 February 2016 - 06:18 PM

Thank you very much for all of the help!







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