It's up to your scleroderma expert to figure out whether you have limited or diffuse, but it seems to be very common for people with systemic sclerosis to not know exactly which subtype they have. If I recall correctly, a survey in the UK showed that about half of systemic patients had not been told whether they had limited or diffuse.
The thing is, both limited and diffuse can affect any of the internal organs. So the primary difference in categorizing is that limited means that the skin involvement is more limited, in that it is confined to the hands, feet and/or face. Whereas diffuse can cause skin tightening even above the elbows and knees and on the trunk, etc.
The worst form of scleroderma is a very rapidly progressing diffuse scleroderma. Within weeks, it can cause widespread skin tightening. Generally speaking, they figure the skin involvement can sometimes be reflective of the damage to internal organs. But there are exceptions to every rule, and some people can have primarily skin tightening, and others can have a lot of internal organ involvement but little or no skin involvement.
Basically, if you are still alive a few months after onset, and your skin isn't tightened from head to toe, then you do not have the absolute worst kind of scleroderma. It is entirely "normal" for systemic scleroderma, of either type, to affect the entire gastrointestinal tract, from stem to stern.
It's also normal for things to be worse during the onset stage, like the first year or two. I definitely know how it's rather alarming to get new symptoms every whipstitch! But then things often settle down, even on their own accord, and usually resemble more of a chronic illness than a rapidly progressive, downward spiral illness. Most of us will sprout our most prominent symptoms in the first few years, and then be left to deal with the fallout on an ongoing basis.
For more information on this topic, we have lots of educational videos, especially about the Types of Scleroderma. But no matter what I say about what type and what classification, it's up to your scleroderma expert to define what type you have. Don't be surprised if they sit on the fence about that for a few years, waiting to see how things develop.
On the positive side, the normal course of scleroderma is for it to wax and wane. That means, when we are in a spell of worsening, we can be hopeful because, with proper care (which can even include rest and relaxation), it is likely that we will have a spell of improvement, right around the next bend!