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Internal Body Thermostat Not Working?

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#1 Kathy D

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Posted 19 March 2016 - 06:24 PM

Any thoughts on this? I am having new and more intense hot flashes. I am confused, thought menopause had already happened and I was done, no menstruation for many years and hot flashes back then too.

I had terrible night sweats from 2000-2008 til I was diagnosed, the medication helps a lot; I still sweat at night, thankfully not as much (less chills after soaking pillow and pj's). My thyroid went hyper in late 2011, now in remission according to bloodwork. My doc called it Mild Graves Disease. LOL it did not feel mild to me!

I had 3 week cycles for decades, yes, 3 weeks, not 4 weeks. Then, IUD placed, unknowingly on top of a large uterine polyp. At that time I was so sick from Sclero, not diagnosed, I complained but was not heard and not my normal vocal self kind of patient, constant bleeding and infections for a couple years until IUD removed, large polyp removed (benign), then, a few sparse periods. Conceived miracle baby during that time, gave birth at age 40.5 then from sporadic to no menstruation again in a year. Almost 4 years later after that I am having more intense hot flashes. My annual ob/gyn check ups are normal.

How in the world am I getting so HOT sometimes now? Possible my defunct ovaries finally gave up though menstruation stopped several years ago?
Diffuse Scleroderma Diagnosed March 2009

#2 Shelley Ensz

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Posted 20 March 2016 - 05:47 AM

Hi Kathy,


You'll need to see your doctor over any change in symptoms, including hot flashes, of course.  As it happens, hot flashes are very common in women, and as you've already discovered, they can be caused by many things other than just menopause.  As we age, our comfort zone for temperatures shrinks, so even without scleroderma or thyroid dysfunction or menopause or anything else, we are likely to encounter hot flashes.


A first step is to review all your medications to see if this is a side effect. Many medications have this as a side effect, See Hot Flash Guide by Drugs.com. Hot flashes are the polar opposite of Raynaud's, so also look closely at any treatments you may be taking for Raynaud's, as it might be a bit overly effective at the moment.


Please let us know whatever you find out about this with your doctor.



Warm Hugs,

Shelley Ensz
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International Scleroderma Network (ISN)
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#3 Joelf


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Posted 20 March 2016 - 10:59 AM

Hi Kathy,


Sorry to hear that you're experiencing hot flushes, having hopefully thought you'd seen the last of them!


Thankfully, even during the menopause I managed to escape them (I wouldn't know a hot flush if it jumped up and bit me! :wink: ) but I can understand how thoroughly unpleasant they must be for you.


As Shelley has advised, I do think that you should go back to your doctor for advice, as any material change in your symptoms is worth investigation.


Please do let us know the results of any appointments with your doctor.




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#4 quiltfairy


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Posted 20 March 2016 - 04:40 PM

Hot flashes can really be uncomfortable; I have been going through them for about 10 years. Once I think they are gone, here they are again.

They have gotten better over the years, but I also had no hormone supplements or meds to help with all the changes. Every time I quit a job or got fired, mom and dad would say go home and lock myself in for a week because I was a emotional wreck, but all that is OK and I made it through.

Bless you and I will be thinking about you also.

#5 dimarzio


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Posted 03 April 2016 - 11:35 PM

I'm male so I can't blame my hot flushes on the menopause - but I do get them quite regularly - I experience extreme cold most of the time, particularly in the arms legs and face.


Then all of a sudden, my body gets hot and my head gets hot, but the cold arms and legs remain. It seems that my body thermostat isn't working either, but I think it could be due to flare ups of the autoimmune disease, like when you get the flu or a bad cold.


The heat generally subsides within a few minutes though and then I'm back to being cold again.

#6 quiltfairy


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Posted 04 April 2016 - 03:20 PM

I don't know where that is but on the internet they are doing a study on male menopause.

Basically when a wife goes into menopause and has the hot and cold flashes her husband usually doesn't. I don't know why, I wonder sometimes but I hope you get better.

I did that a lot when I first got Scleroderma and things have calmed down I will be thinking of you and bless you.