Hi everyone,I have not been diagnosed by a scleroderma specialist yet and until I went for a routine check up in February had never heard of systemic sclerosis. Back in September I started suffering with aches and pains in my joints, overdoing it at work I thought so took pain killers and got on with life. Then in November I started with chest pains one afternoon and by evening had been rushed into hospital. After x rays and monitoring and blood thinning drugs, I was let home 3 days later.
I then had ct scans, stress echo cardiogram and more x rays and an appointment with a cardiologist in January, it was 2 days before this appointment that I had my first Raynaud's episode (my mum had it so I knew what it was). The cardiologist diagnosed me with vascular spasms with Raynaud's, put me on tablets and told me to see my Gp in a month.
When I went to the Gp in February for my blood pressure check he noticed I couldn't straighten my arms and mentioned scleroderma and refered me to a rheumatologist, of which I have an appointment in April, 10 days and counting.
I went back to my Gp a month later and he noticed other worrying symptoms so tried to get me seen earlier so off I went to the hospital the next day, waited 4 hours to be seen by a doctor (not a rheumatologist) he took one look at me and said Systemic sclerosis took bloods and said to wait for my appointment with the rheumatologist.
I am now in so much pain with either my joints, tendons or muscles, I can't tell which. I have swollen feet, ankles, knees,hands and fingers, trouble swallowing and walking. My elbow joins have got so bad I can't feed my self properly, bathe or undress without help.I feel as if my life has been suckered out of me.
Has anyone else had symptoms come on so rapidly and were you as scared as I am feeling right now.