Jump to content

Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!



  • Please log in to reply
3 replies to this topic

#1 Clementine


    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 684 posts

Posted 10 April 2007 - 11:03 AM

I was wondering how you are doing on your oxygen. Are you getting comfortable with it and do you feel better?

#2 janey


    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,118 posts
  • Location:New Mexico

Posted 10 April 2007 - 12:33 PM

Hey Jen,
I guess the more you use it, the easier it becomes. The smaller tank and an attractive packback purse makes it easy to carry and doesn't scream - supplemental oxygen! I just run the tubing around my waist and up my blouse and march on! If I don't use it, by the time I walk to where I'm going, I go into a coughing fit which is more embarrassing that the cannula. Today in a restaurant I found myself not even thinking about it.

I did go to Santa Fe last weekend and at 7000 feet discovered that I needed it ALL THE TIME! I took my oximeter and just sitting around my O2 dropped to 85. At home (just over 5000 feet), my O2 saturation is around 95 just sitting around. It's going to be interesting when I travel to sea level. I might not even need it. That would be nice!

So how are you handling the higher altitude? Are you finding that you need the O2 more and more? How's the new hubby handling it all?

Big Hugs,

#3 Clementine


    Gold Member

  • Topic Starter
  • Members
  • PipPipPipPipPipPip
  • 684 posts

Posted 10 April 2007 - 01:01 PM

I am so glad you had the restaurant moment!

I never thought about hiding the cannula under my top. Thanks for that idea. I still try not to use my oxygen in restaurants still, because I feel SO unattractive with it and I don't like feeling that way when I am out.

My husband claims he does not even notice the oxygen cannula. I am not sure how he can get passed the indents it leaves in my face!!! He met me right after I was diagnosed, which was right when I had to start using it so it's not new to him. We have started talking more about him getting a new job, perhaps in the DC area, so I can breathe better.

I definitely need oxygen at 5280 (altitude here in Denver) while doing most activities. In Arkansas where the elevation was around 1100, I did not even need it while exercising! Keep in mind it's not my nature to work out hard, ever. I have been really tired lately but I am not sure if I can blame it on the elevation in Colorado. I am going to be more deligent about using my o2 around the house and see if that helps. We have stairs everywhere so it's just a good idea to keep it on.

I have PFTs next Wednesday!!! I have coughing fits when I do those....so wish me luck. I'll have an echo in June.

I bet you won't need supplemental oxygen at sea level. When I travel to sea level, I still use the concentrator at night but don't worry about it for day use.

I'm glad to hear you are adjusting. It keeps getting easier. And, aren't the oximeters great? When I first went on supplemental o2, I used my ALL the time. Now, I can kind of guess what my saturation is by the way I feel.

Take care Janey!

#4 Claudia-DR


    Senior Bronze Member

  • Members
  • PipPipPip
  • 78 posts
  • Location:The Caribbean

Posted 12 April 2007 - 02:58 AM


You really have to come down here then; it's sea level all right.

One can tell just by the way my hair frizzes up when I drive close to the sea.

You guys won't need the oxygen, just a good hair dyer... :lol: