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Found a new Sclero friend !

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4 replies to this topic

#1 Margaret


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Posted 05 April 2016 - 09:56 AM

Hi Everyone.

Talk about a small world!! I work two days a week at our place of worship's thrift store. A friend comes in all the time, with her therapy dog, and we talk all the time. Her dog needs major surgery, so the local paper ran an article about it asking for funds to offset the costs. They then talked about my friend having a rare disease, called systemic Scleroderma ! She was in today and I asked her *Where's your Scleroderma?!?!?* She just looked at me, in surprise, when I went on to tell her about Gareth . She was dx'd about 10 yrs ago, like Gareth. Her's is all internal (R, E, T out of CREST), Sjogren's, and MAJOR fatigue. Ohhhhhh, my! I had no idea. I knew she was *sickly* but she never put a name to her problems. She goes to J Hopkin's Scleroderma clinic. So, now I have another avenue to go down whenever I don't know what's going on with Gareth; of course, you guys are always my first place to run to!! :hug-group:

Take care, Everyone.
Mom to Gareth, 27 years old, DS/ASD

#2 judyt


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Posted 05 April 2016 - 01:22 PM

Hi Margaret,


How lovely to find a new friend, I hope your friendship blossoms and you can be a comfort to one another.



#3 Sweet


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Posted 06 April 2016 - 05:11 AM

That is so awesome!!! Its nice to have a face to face connection. 

Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#4 Joelf


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Posted 06 April 2016 - 07:48 AM

Hi Margaret,


What an amazing coincidence!


It's great that you've found a friend and another source of help and support.


Hugs to Gareth!! :hug-bear: :hug-bear:


Best wishes,

Jo Frowde
ISN Assistant Webmaster
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International Scleroderma Network (ISN)

#5 Shelley Ensz

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Posted 07 April 2016 - 07:55 AM

Hi Margaret,


I'm delighted that you discovered a sclero friend in your midst. Who would have guessed? And what fun, to be able to relate to what she is going through. I'm sure that was a very happy surprise for her, as well!



Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.