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Hi all, back again!

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#1 Lisa Vance

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Posted 29 May 2016 - 11:23 AM

Hi Ms Shelley, this is Lisa Vance, I have been a member for a long time! I couldn't figure out how to get back with you guys. My story was published in Voices of Scleroderma, volume 2, that was a long time ago! Just wanted you to know that I'm still kicking, now I've got to figure out how to post, everything has changed since then. I'm thankful I found the site again. Have a great day!

#2 Joelf


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Posted 29 May 2016 - 07:46 PM

Hi Lisa,

How lovely to hear from you again! :happy:

I've moved your post into the Main forum, so that it is more likely to be seen by more of our members.

I do hope that things are going well for you.

Now that you've found us again, I hope you'll keep posting and let us know how you're doing.

Kind regards,
Jo Frowde
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#3 Ivybennett



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Posted 02 June 2016 - 02:31 PM

Hi and I'm so frustrated. I have been treated for MS since 2002. Now my fingernails are separating from the nail beds and neurologist is concerned I may have a form of scleroderma. My mom had scleroderma and my sister has sjogren's.

My ANA is normal and Rheumatoid factor negative.


I don't have a Rheumatologist closer than 2.5 miles.


Anyone else have nail problems? I don't have Raynaud's either.