Jump to content

Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Hope on the Horizon

  • Please log in to reply
4 replies to this topic

#1 Kathy D

Kathy D

    Silver Member

  • Members
  • PipPipPipPip
  • 242 posts
  • Location:Rocky Mountains USA

Posted 12 June 2016 - 09:29 PM

I am enthralled with this video.  I cannot believe I have not seen it before tonight as I have scoured  every detail of your, or this site for years.  I would love to share it.  May I ask for permission?  If yes, how do I do that?


Thank you.


I also plan on printing Sylvias husband poem in a Father's Day card for my husband.

Diffuse Scleroderma Diagnosed March 2009

#2 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,263 posts
  • Location:Minnesota

Posted 13 June 2016 - 08:11 AM

Hi Kathy,


Yes, you may share the link to our Hope on the Horizon video or to any of our pages, anywhere. The trick is to just include the link and to attribute the link to sclero.org or the International Scleroderma Network (ISN).


That video is very special to me.  The scenery I used is from our old family cabin on the lake. The poem is by Fran Waranius who felt inspired by the SD World website that Judy Tarro had created.  Fran and Jude have both passed away.  Jude was also a volunteer for the ISN, and a member of Sclero Forums as JudeTheGrouch, literally up until the day she passed away. She donated her lovely SD World website to the ISN when she passed away.


This year, Jo Frowde has been updating and revamping the SD World website as part of her webmaster training program with us. Recently she redid all the pages for Don and Karol's cross country tripKarol was the original penguin mascot for our Scleroderma Webmaster's Association (SWA) and that link includes photos of Fran and Jude and Syl, even me.  Some people here may still remember my speech at the first SWA meeting. In the middle of my speech, Don's service dog, Brandy, was kidnapped by a penguin, and held for a ransom of chocolate for the whole audience!  


Karol and Brandy have since passed away, as well, so Don's heart was warmed by the effort Jo undertook to revive the trip section of Jude's site.


Syl would be delighted for you to use her poem for your Father's Day card. (Also see: Syl's Poetry on our main site.)



Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 miocean


    Senior Gold Member

  • Members
  • PipPipPipPipPipPipPipPip
  • 925 posts
  • Location:NJ

Posted 14 June 2016 - 11:09 AM

I had never seen this before and am glad you brought it to our attention, Kathy. Thank you.



ISN Artist

#4 Joelf


    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,550 posts
  • Location:West Sussex

Posted 15 June 2016 - 06:56 AM

Hi Miocean and All,


Do check out SD World website; it's a great site for information, fun and games. I spent ages fiddling around with a game of checkers!


As Shelley has said, I'm in the process of updating the whole site (and haven't managed to crash it yet :wink:  :lol: )

Jo Frowde
ISN Assistant Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#5 miocean


    Senior Gold Member

  • Members
  • PipPipPipPipPipPipPipPip
  • 925 posts
  • Location:NJ

Posted 16 June 2016 - 12:18 AM

Thank you for all you do for all of us. Thank you to all the volunteers who keep us all up and running.

ISN Artist